About Families of Spinal Muscular Atrophy

Families of SMA was founded in 1984 for the purpose of raising funds to promote research to find a cure for Spinal Muscular Atrophy, and to support families affected by SMA. FSMA is the largest private funder of SMA research and is leading the way to find a cure. FSMA is currently funding 2 multi-center clinical trials for 2 different drugs that have shown promise increasing SMN protein levels and the largest, most aggressive drug discovery programs ever undertaken to find a cure for SMA. FSMA has funded $20 million towards SMA research, and has already committed an additional $15 million over the next three years.