About Pacific Northwest Friends of FSH Research

Facioscapulohumeral Dystrophy, or FSHD, is a degenerative muscular disease for which there is no treatment or cure. Through increased public awareness and research funding, we believe a cure can be found. The specific objectives and purposes of the corporation shall be: 1. To encourage, promote and fund increased scientific and clinical research for Facioscapulohumeral Dystrophy, or FSHD, with the goal of identifying treatment and a cure for the disease. 2. To conduct fundraising efforts and solicit grants and contributions from individuals, private foundations and others, in order to sponsor research to advance the study and understanding of FSHD. 3. To disseminate information about FSHD and encourage additional public support for FSHD research by raising public awareness of the need for more research funding.