Ryan's Quest

The mission of Ryan’s Quest is to raise awareness for Duchenne muscular dystrophy with the purpose of allocating funds for research that has the greatest potential of finding a treatment or cure for this disease. Duchenne muscular dystrophy is the most common lethal genetic disorder diagnosed during early childhood, affecting 1 out of every 3,500 boys. It is a progressive muscle disorder that causes the loss of muscle function and independence. Typically, boys affected by DMD will lose their ability to walk between the ages of 8 and 12, require respiratory support by their late teens and survive only into their 20s. It knows no boundaries and crosses all cultures. To date, there is no cure. The funds received through Ryan's Quest are directed, in full, to Duchenne muscular dystrophy research. Ryan's Quest bases all decisions regarding the awarding of funds to research projects, by speaking with lead doctors, researchers and scientists concerning current and promising advances being made in Duchenne research. We also collaborate with other non-profit organizations, which have similar goals to that of Ryan's Quest. These organizations also have scientific advisors who specialize in the field of DMD to determine the validity and potential of a given project. Thank you for joining our Quest! Ryan's Quest is a 501(c)(3) tax exempt public charity EIN#26-1890529

Tax ID

26-1890529

Address

Po Box 2544
Hamilton, NJ 08690

Website

http://www.ryansquest.org/