Michael Ellis's Fundraising Page
Page Creator: Michael Ellis
Event: Milwaukee's Lakefront Marathon
Event Starts: Oct 4, 2009
Training buddies: Addie & Cate
Fundraising Page Image
Addie & I - enjoying the ride!
About our nonprofit:
SPECIAL FRIENDS FOUNDATION INC
The Special Friends Foundation is dedicated to providing information and resources to individuals with RTS and their families. The Foundation provides assistance to cover expenses incurred due to RTS that...
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Fundraising target: $4,000
So far we have raised: $5,560.00
Fundraising progress
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Our personal message:

On an early Sunday morning in October, I will be joining a few thousand others who’ve decided running 26.2 miles sounds like a fun way to spend a fall morning. This will be my third entry into Milwaukee’s Lakefront Marathon and I’m quite proud to be representing and raising funds for the Special Friends Foundation (SFF) again this year. 

 
When my daughter Addie, now 6, was diagnosed with Rubinstein-Taybi Syndrome (RTS) 4 years ago the first shoulder we leaned on was that of the SFF. RTS is a relatively uncommon genetic condition that impacts individuals like Addie physically, medically and cognitively to varying degrees. Because it is rare, difficult to diagnose and the community relatively small, access to information about RTS can be challenging to come by. Special Friends was critical in helping us gather information, resources and connections with families touched by RTS from across the globe.
 
The SFF offers families financial assistance for medical and therapeutic needs incurred because of RTS that may not be covered by other insurance or medical assistance programs. They also help underwrite RTS family reunions that happen in varied hubs in the US. It’s at these reunions that families affected by RTS gather to laugh, cry, and share the experiences that help each other on the journey and offer each other the tools they need to provide an enriching and loving environment for their children.
 
Last year, thanks to the kindness of so many wonderful people we were thrilled to make a nearly $11,000 contribution to Special Friends. I don’t know that we could expect in our wildest dreams to match that again this year, but I do know that every cent we can provide will go a long way toward helping some wonderful people in need.
 
Our friends at the William Starck Jones Foundation have graciously offered to match the first $2000 raised and we look forward to hopefully taking full advantage of their generosity again this year. Special thanks to Tom Landers and everyone at the Foundation for thinking of us.
 
Thank you for taking the time to visit the site and for considering helping out the Special Friends Foundation. Please feel free to pass the information along to anyone you feel might be interested
 
For more info on RTS, click here.
 
For more info on the Special Friends Foundation, click here.
 
For more info on our life with Addie, click here

Online Sponsors to date:
Display Name Date Amount  Comment
Josh, Traci, Emma, Quinn and Calvin Levy 11/6/2009 $50.00 Go Luck Mike! Saw Kate's article on the Cumberland Website -- awesome!!! 
Cubby & Gary Lang 10/4/2009 $50.00 I know you'll push hard for Addie! 
The Smith Family- Katrina, Mike, Anna & Shawn 10/3/2009 $25.00 We'll be cheering you on from NC!!! Thanks for running on behalf of our RTSweeties!!! 
Amy and Mike Johnson 10/2/2009 $20.00 Good luck! 
Liz Rolain 10/1/2009 $20.00 Best of luck Michael to you & your family & your cause 
The Hansmann Family 9/29/2009 $25.00 Go Michael! 
Patty Campbell 9/27/2009 $25.00 Your extended RTS family thanks you! 
The Braun Family 9/24/2009 $50.00 Keep the faith 
Pat Jermain 9/22/2009 $25.00 Mike, wish I was there this year to cheer you on! 
ElizabethP. 9/15/2009 $20.00 Hugs! 
Karla Mueller-Schrader 9/14/2009 $25.00 Good luck Mike!  
The Donnelly Family 9/14/2009 $50.00 Hope your run is a great success 
The Hussey Family 9/12/2009 $25.00 Go Michael! Thanks for all your family does for our RTS Sweeties!  
The Braunies 9/11/2009 $50.00 Hooray for you-all Ellis Family! Thanks for the JDRF donation. 
John, Jen and Colton Hart 9/11/2009 $50.00 Good luck and God speed. Love you guys.  
Aunt Nancy from California 9/10/2009 $50.00 In Honor of Lolo's birthday and love to everyone on Elkhart Dr 
Rob Trentadue 9/10/2009 $20.00  
Grace Hickman 9/5/2009 $25.00 Best wishes for another great fundraiser! 
The Papajohn Family 9/5/2009 $25.00 Thank you for your inspiration 
Robin Honken 9/5/2009 $50.00 thank you for running for a great cause 
Laury 9/1/2009 $20.00 Happy Birthday Aunt Nancy 
Stan Shulfer & Donna Pasternak 8/21/2009 $20.00 Have a great run! Hurray, Mike! 
Lisa Blue 8/21/2009 $25.00 Run hard! 
Brian and Kathy Lueck 8/20/2009 $100.00 Blessings to you and your family Michael! 
Darrell and Beth Bruggink 8/19/2009 $100.00 May God bless your run... and Addie! 
Laura Neuman 8/15/2009 $25.00 Good Luck Mike. 
Deborah Fingerman 8/15/2009 $25.00 Thank you for running again for our special kids! 
Jeremy McGovern 8/13/2009 $20.00 Good luck 
Roger Daudelin & Family 8/11/2009 $50.00 I'll drive the 26 miles, because as you know, I am a very good driver. 
Mike and Sandy Lessiter 8/11/2009 $50.00 Good luck, Michael! 
The Krills 8/10/2009 $100.00 Good luck with the run...One of these days we can do a lap around the football field. 
Alice Musser 8/10/2009 $20.00 Run fast! 
Sue Ramstack 8/10/2009 $10.00 Good Luck Michael! 
Frank and Pam Lessiter 8/7/2009 $50.00 Good luck with the run. This is an excellent cause! 
The Foley Four 8/6/2009 $25.00 GO Michael! 
The Regans 8/5/2009 $100.00 Atomic batteries to power, turbines to speed!!! 
Natalie 8/3/2009 $100.00 Addie, your dad rocks! 
Chris & Anita Bohn 7/30/2009 $50.00 All that training at the Cramer Crib paid off 
The Alaskan Harts 7/30/2009 $25.00 good luck! we love you! 
Jerry Burstein 7/30/2009 $20.00 Best of luck always! 
Noonan Family 7/30/2009 $25.00  
Dianne Coopman 7/22/2009 $75.00 from you mom Laury's friend; have a great run! 
The Muth family 7/22/2009 $25.00 Kate Muth 
Gene & Sally Ellis 7/21/2009 $100.00 Run straight to the goal with purpose in every step! God bless. 
Maureen McKnight & family 7/18/2009 $50.00 Way to go! 
Michelle Parenteau-Stevens and family 7/16/2009 $50.00 You are a great Daddy! Best of luck on the run! 
Judy & Jim Fitzgerald 7/13/2009 $100.00 This is special ~ way to go! 
Mike McDonough 7/9/2009 $25.00 Good luck, Bra! 
Janet Ellis 7/8/2009 $60.00 Go Michael Go,We're all thinking about both U,Addie,Love U alll... Aunt JBO,RICKY&SHORTY!! 
The Brookfield Ellis Family 7/6/2009 $250.00 Way to go Michael and Addie - redefining the Hustle Award 
Lolo 6/29/2009 $100.00 I'm so proud of all of you - love mom. 
Dianne Farrell 6/27/2009 $100.00 thanks for keeping me in the loop!! good luck!! 
Anonymous 6/27/2009 $20.00  
The Kirschbaum Family 6/27/2009 $100.00 Way to go, Michael! Hello to your beautiful family. 
The Duval Family 6/25/2009 $100.00 All the best to the Ellis family. Hope it's cool for the run, Mike! 
Jim Papageorge 6/25/2009 $50.00 I applaud your efforts! 
Uncle Bud & Aunt Barbara Erskine-Delaware 6/24/2009 $20.00 have a good run for a good cause. 
Chris Knepler 6/23/2009 $100.00 You're a good man, Michael Ellis. Good luck w/ the run. 
Aunt Nancy from California 6/24/2009 $100.00 Go Mike! Love you all!  
John Roche 6/23/2009 $50.00 Best of luck with the marathon. Hope you and your family have a great summer. 
Pat O'Neill 6/23/2009 $100.00  
Chris Woelffer & family 6/23/2009 $100.00 Keep up the great work Michael...All the best to your family 
The Donoian's-Mike, Lisa, Jessica and Zachary 6/22/2009 $50.00 Glad to support you in any way Ellis Family! 
Cathy, Pat, Amy & Joey Daniels 6/22/2009 $50.00 We're happy to support you and what looks like a great organization! 
Michael, Terri, Cate & Addie 6/22/2009 $50.00 Thank you Special Friends Foundation! 
Verisign secure site-- click to verify
* Total raised online: $3,465.00
Amount raised offline: $2,095.00
Grand Total: $5,560.00
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