About Dystrophic Epidermolysis Bullosa Research Association of America, Inc.

Description: Finding a cure for Epidermolysis Bullosa and providing resource, referral and support services for persons with EB.

Mission: DebRA of America is the only national oganization that raises funds for research for a cure for EB and provides services and programs for people with EB and their families. EB is a debilitating, genetic skin disease in which painful blisters form due to minor friction inside and outside of the body. Blisters interfere with the simplest acts of daily living such as eating, walking, bathing, etc. These blisters can develop into serious wounds. There is no cure for EB, just trteatment of wounds through daily bandaging to prevent further damage and infections. Types of EB range from mild to severe, and EB can be fatal in some cases. Skin cancer can occur among people with one type of EB.