1,872,545 people

have helped

raise $100,574,265

for

27,061 nonprofits

using Firstgiving

Charity banner image
NYC Marathon--Run for our Sons
Page Creator: Brian Levin
Event: ING New York City Marathon 2007
Event Starts: Nov 4th 2007
Fundraising Page Image
Jake Levin
About my nonprofit:
Foundation for Their Sake
Fundraising target: $500,000
So far I have raised: $302,622.00
Fundraising progress
25% 50% 75% 100%
Share this page
My personal message:
Welcome to our NYC Marathon Fundraising site

This is my son Jake Levin.  Jake is a 4 year old triplet, and is energetic, active, and inexhaustible. 

Several months ago, we learned that Jake was born with a disease called Duchenne Muscular Dystrophy. This is about the worst thing you can ever experience as parents, and we are now committed to finding treatments and a cure in time to help Jake. 

We have put together a team to run the New York City Marathon on Nov 4, 2007.  All the money we raise will go directly to Project Catalyst which is at the forefront of developing new drugs to treat this horrible disease. 

To learn more about our fight, please visit our blog

 About the Disease
Boys with Duchenne are typically diagnosed before the age of five. Their muscles swell and joints become restricted. They are easily fatigued and have difficulty keeping up with others their age. Most Duchenne boys need a wheelchair between the ages of 10 and 12. The simplest of tasks, such as holding a fork or turning over in bed, becomes very difficult. In the later stages, heart and breathing muscles begin to fail. Historically, most boys with Duchenne have not survived their teens.  There is no cure…and it can happen in any family.

The Need for Research
Promising Duchenne research is being stalled due to lack of funding and bureaucracy. For the families of Duchenne boys, this is a tragedy.

As other disease groups fought for federal funding, there was no muscular dystrophy organization fighting for those dollars. As a direct result, our boys are not much better off than when they discovered the Duchenne gene. Compare this with Cystic Fibrosis, where a committed organization that was committed to research and used federal funding has doubled the life expectancy of their kids. Life expectancy for Duchenne has barely improved.

Reason for Optimisim
Gene therapy and stem cell research have made huge advances in just the last year. These actual cures could be any where from 5-20 years away. There is however, a new class of drugs and therapies which will not cure the disease, but will fool the body into producing dystrophin or will upregulate other proteins that could take the place of dystophin, while at the same time eliminate some of the damage that occurs in the muscle cells of Duchenne boys. Although boys treated with these drugs will never be world class athletes, there is hope that they could lead a relatively normal life, much like diabetics.

These drugs could be in clinical trials in 2-3 years…if there is adequate funding NOW!

I hope you’ll consider supporting our efforts. You can either donate on-line, or send a check made out to The Foundation for Their Sake to:

The Foundation for Their Sake
5 Cherry Hills Farm Ct
Englewood, CO 80113

Thanks for your support!

The Levin Family!

Online Sponsors to date: Page 1 of 3     Latest  << | < | > | >>  Earliest  
Display Name Date Amount  Comment
Jeremy Hirsch 4/22/2008 $100.00  
Keiser Family 1/15/2008 $100.00 In honor to Ines' first bday. Mia's friend :-) 
Bernardita Quiocho 12/28/2007 $100.00 May goodness and kindness follow you. 
Liz & Jack Priven 12/20/2007 $50.00  
Kelly and Jon Millen 12/19/2007 $100.00 Our daughter Annie is a classmate of Jakes.Your family is in our prayers. 
Karen Recker 12/19/2007 $50.00 My son is Jason Oates. I'm giving this in honor of my grandson Rhys. 
michael D 11/21/2007 $50.00 Abby Kahan forwarded this - sending positive energy to you as well! 
Cheri Michelson & Stan Arky 11/21/2007 $200.00 WE love you guys. You are amazing. 
Ty & Katy Notestine 11/13/2007 $50.00 All the best to you & your family. (friends of the Weiner's) 
lisa romano 11/9/2007 $100.00 Way to go! (friend of jodi delillo) 
Amy and Harry Perper 11/7/2007 $50.00  
Wendy & Mike Meoli 11/6/2007 $100.00 great job and lots of love 
Matt and Jenny Gillis 11/6/2007 $100.00 Way to go Brian!!! Our thoughts and prayers are with you and your family. 
mark and jodi delillo 11/5/2007 $100.00 (old friend of allison) 
Ross and Cynthia Peet 11/5/2007 $100.00 Brian your strength is the stuff of LEGEND!  
Hiromi Printz (friend of Abbie & David Kahan) 11/5/2007 $100.00  
Sue Ellen Weiss 11/3/2007 $100.00  
Betty Karsh 11/3/2007 $25.00 Congratulations on such a great effort. 
Mindy and Ed Aaron 11/3/2007 $250.00 Good luck with the race - a great step towards winning this battle!! 
Robyn Rubinoff (friend of Abbie & David Kahan) 11/3/2007 $50.00  
Ltish 11/2/2007 $250.00 Good luck and good run. xoxoxoxo  
jerry a shults 11/2/2007 $500.00  
Howard, Shira & Henry Kozloff 11/2/2007 $75.00 (oops...wrong number the first time) 
Howard, Shira & Henry Kozloff 11/2/2007 $25.00 Go get 'em, Bootsie! 
GQ 11/2/2007 $100.00 go go go! 
jessica walker 11/2/2007 $50.00  
Mackiernan Family 11/2/2007 $500.00  
Jon, Sheryl and Ryan 11/1/2007 $100.00 Keep Fighting!! Our Thoughts and Prayers are with all of you. 
Scott and Debi Voigt 11/1/2007 $250.00  
luke & susan 11/1/2007 $50.00  
Christy Meisinger 11/1/2007 $50.00 You are helping so many with these donations. For Jake, for my brother, for fighting MD. 
Alyssa & Matt Syrdal 11/1/2007 $50.00 Levins we love you! Allison and Brian you are amazing! Big hugs and kisses to Jake! 
Chelsea Hardy 11/1/2007 $25.00 Jake, next play date with Alyssa, I am taking you horseback riding! I love all of you, Chelsea 
DBS Enterprises 10/31/2007 $250.00 Best of luck with the run. 
Jeff Pierce 10/31/2007 $25.00 My prayers are with you and your family  
Melissa 10/31/2007 $10.00 Thanks for all you're doing! 
Tim Michals 10/30/2007 $500.00  
Beth Wicht 10/29/2007 $50.00 Very impressive - good luck!  
Lisa and Larry Herz 10/29/2007 $100.00 Thinking of you! 
John Keenan 10/29/2007 $250.00 Good luck Brian.  
Christinas Family 10/29/2007 $100.00 Good Luck on the 4th 
Amy, Tal, Scarlett and Jack 10/29/2007 $100.00 We love you guys!! Good Luck!! 
Erica Morris & Andy Goldstein 10/29/2007 $100.00 Our thoughts are with you - good luck on race day! 
Bill Wiberg 10/28/2007 $250.00  
Barbara Bickham 10/28/2007 $250.00 Brian, Good Luck in the race, our thoughts and prayers are with you. 
jessica fish 10/26/2007 $100.00 with lots of love 
Robert and Julie Rodgers 10/26/2007 $25.00  
mark, mary jane, calder, rory de vere white 10/26/2007 $1,000.00 run brian, run! your families strength, conviction and commitment is inspiring. we love u all 
Melissa Anzman 10/25/2007 $200.00  
Eric and Denise Tibere 10/25/2007 $200.00 With loving thoughts, Eric and Denise Tibere 
Anita Capobianco 10/25/2007 $50.00 Good Luck Brian - you & your family are in my thoughts & prayers 
melissa boshco 10/25/2007 $100.00 best of luck 
Jill 10/24/2007 $25.00 Good Luck on the 4th 
Scarlett, Erica & Evan Fisher 10/24/2007 $100.00  
Angela Gaeth 10/24/2007 $100.00 I wish your family the best of luck. You're an inspiration to all. 
Raelene, Ryan and Jordan 10/24/2007 $400.00 Brian, Allison, Jake, Sam and Lexi, We love you 
Bob and Susan Rosenberg 10/24/2007 $100.00 We're with you in spirit at the finish line 
Howards 10/24/2007 $100.00 We will be thinking of you and cheering you on. 
The Tuten's 10/23/2007 $500.00 Keep it up Levins - you will make a difference! 
amarks 10/23/2007 $100.00  
kirsten handler 10/22/2007 $200.00 we support you every step of the way!! BEST..... 
Ricki,Ira,Danni & Morgan Horowitz 10/22/2007 $500.00 Our thoughts & prayers are with you! Much love to you all! 
gail Anzman 10/22/2007 $100.00 Your my sunshine Jake love auntie gail 
Alissa Alpert and Matt Joblon 10/22/2007 $100.00 In support of the Levin family 
Mary Williamson and Kurt Kiefer 10/22/2007 $150.00 Go, Brian and Jake! 
Jill Moe 10/21/2007 $25.00 Alison- I knew you from the Boyer Mom's group, we are rooting for you Jake! 
Marci n Barney(Abbie's Brother)Danzansky 10/21/2007 $50.00 Good Luck! We'll be thinking of you on November 4th. 
Deb Morris 10/21/2007 $50.00 My thoughts are with you 
Kara Diamond-Husmann 10/20/2007 $25.00 Good Luck Brian! I will running New York Also!!! 
Kris & Tricia Cone 10/20/2007 $100.00 Sorry it has taken so long to do this.  
Brandon and Jaclyn Perry 10/20/2007 $100.00 best of luck! 
Greg & Amanda Clayman 10/20/2007 $300.00 we'll be there and keeping an eye out for Team Brian 
Sam & Phyllis Feder (friends of Rick D) 10/20/2007 $100.00 Brian, you are a great father! Best of luck to you and your entire family! 
Karen Weiss & Brad Schwartz 10/19/2007 $100.00 Happy Birthday Rhys! We love you and the Levin Family xo 
Kaia Akre 10/19/2007 $250.00 We are with you! Kaia, Gary, Finn and Beck 
andy schocken 10/19/2007 $100.00 Don't hurt yourself, Bootsie! 
Paige and Eric Meier 10/19/2007 $200.00 We will be thinking of you in November!  
bobbi krantz 10/19/2007 $100.00 our hearts are with you ricki's mom & dad 
Ed and Betsy Zimmerman 10/19/2007 $1,000.00 We heard about your son through Matt and Adriana. Best wishes to you and good luck on your run. 
stacey and seth marcus 10/19/2007 $100.00  
Tracey, Ryan and Grady Hartman 10/18/2007 $50.00 Good luck Brian, our thoughts and prayers are with you. 
arlie and steve 10/18/2007 $100.00 You are in our prayers. good luck.... Rick,s friend 
Henry and Ryan Peet 10/18/2007 $100.00 Happy Birthday Rhys! 
Peter and Candace Caplin 10/18/2007 $500.00 Wishing you Godspeed (friends of Rick and Cobbie Danzansky) 
carol feldman 10/18/2007 $50.00 good luck! i will be be running nyc as well, and i will say a pray with each mile for jake! 
Jessica Barbour 10/18/2007 $25.00 Keep running for your sons! 
Gilber Kennedy and Natasha Eliz 10/18/2007 $500.00 Run well my friend, we are proud of you 
Ellen & Steven Gottsegen (friends of Abbie & David 10/18/2007 $25.00  
Rick and Cobbie (Abbie's Parents) Danzansky 10/18/2007 $100.00 Wishing for a cure and Strength towards the finish line! 
Abbie and David Kahan 10/18/2007 $100.00 Good Luck! We'll be cheering for you from Florida! 
Jennifer Klein Baldinger 10/18/2007 $100.00 All my love and support!  
Alix 10/17/2007 $250.00  
The Keisers 10/16/2007 $250.00 Happy 1st Birthday Rhys!!! B-We'll be thinking of you on the 4th!  
Dan & Katherine Simon 10/16/2007 $250.00 All the best!!! 
Sean and Christine McDermott 10/16/2007 $1,000.00 Keep fighting Levin's... Good Luck Bootsie 
Al Kal 10/16/2007 $100.00  
Lea, Matthew, Sydney and Mackenzie Cohn 10/16/2007 $500.00 Jake, Brian - we are proud of your spirit! Run, Run, Run!  
Nikolas-Massimo 10/15/2007 $100.00 Jake, you are my best friend 
Asheesh 10/14/2007 $450.00 Good luck B! 
Barrie and Ryan 10/14/2007 $50.00 Happy Birthday Morganne and Hannah Meg! We Love Sam, Jake and Lexi! 
  Page 1 of 3     Latest  << | < | > | >>  Earliest  
* Total raised online: $78,354.00
Amount raised offline: $224,268.00
Grand Total: $302,622.00
Edit your page
Add images, your story, videos, tags, and more.
  rss logo  | more about RSS  

  

 add to Del.icio.us   
If you find anything on this page offensive, please report it to us in confidence by clicking here

* - Transaction fees apply to this amount.

Firstgiving — Fundraising made easy