Sib's Night Out!

                                             Friday,May 18, 2012 in Fenton, Missouri  

                                                 $3.00 donation suggested per child

                                                   More details on registration page. 

                                       JOIN US Rain or Shine for the 6th Annual

FRAGILE, NOT BROKEN WALK FOR KNOWLEDGE

Saturday, June 23, 2012

NEW LOCATION - TILLES PARK

Gloria Rogers Shelter

9551 Litzsinger Rd, Saint Louis, MO 63124

We are celebrating 20 years! No charge to attend!

Limited shirts available day of walk for $10.00.

Resource Area and Games open at 10:00a.m.

Walk Begins at 10:30a.m
Followed with Raffles, Food and Fun!
more information to come

Donations are gratefully accepted and we strongly encourage people to create a page on this FirstGiving site to spread awareness of Fragile X Disorders, share your story and raise funds to support our mission! Prompts will help you create a page after registration or feel free to leave a general donation.
Anyone creating a page (with picture and story) before the event will receive a free Fragile X visor. Any page raising over $500.00 will receive a Fragile X Golf Umbrella.(Prizes to be picked up at the walk).

Registration is requested so we have enough food for everyone!

UPCOMING EVENTS

Fragile X-Related Carrier Disorders Workshop

Saturday, August 11, 2012 at the St. Louis ARC

Featuring Dr. Elizabeth Berry-Kravis, Dr. Deborah Hall and Dr. Mary Molo of the Rush University Fragile X Disorders Clinic

and

the 19th Annual Fragile X Syndrome Symposium 

 Saturday,October 27, 2012

featuring Dr. Marcia Braden

DETAILS TOFOLLOW!

email southard5@sbcglobal for more information

contact Diane @ southard5@sbcglobal.net with questions

Click "START FUNDRAISING" LINK TO REGISTER

CONTACT (314) 835-9673 WITH

Education     Awareness     Advocacy     Research

• Fragile X Syndrome (FXS), causes disabilities ranging from varying degrees of learning problems to varying degrees of cognitive impairment.

• Fragile X-Associated Tremor Ataxia Syndrome (FXTAS), a neurological disorder affecting older adults which involves tremors, difficulty with walking and balance and can affect memory.

• Fragile X-associated Primary Ovarian Insufficiency (FXPOI), which includes early menopause before the age of 40 and ovarian dysfunction.