International Mosaic Down Syndrome Association provides support, information and research to all individuals and families touched by mosaic Down syndrome. As an all-volunteer-run organization, IMDSA is dependent completely upon generous donations to continue its mission of helping families and individuals with mDs. All donations are tax-deductible to the fullest extent of the law.
The average age for individuals to be diagnosed with mosaic Down syndrome is 1-4 years of age. The most common reason for this late diagnosis is the lack of knowledge in the medical field on this rare form of Down syndrome. However, many individuals can go undiagnosed up into adulthood and there are still thousands who never receive a diagnosis.
We at IMDSA strive to help our families and individuals with this rare form of Down syndrome. Please search through our pages and read the stories our families are sharing. And consider making a donation to IMDSA, so we can continue to provide the quality support and information to all of our families and help these children grow up to be the wonderful adults we know they can be!
For more information on mosaic Down syndrome please visit our FAQ's of MDS
There is very little known about mosaic Down syndrome. The only way to discover what mosaic Down syndrome means for each individual is to conduct more research in all areas of mDs.