$10,000
goal
$3,705
Raised so far
Registration has closed, but you can still donate to participants

1st Annual Fragile X “Hike for Hope"

1st Annual Fragile X “Hike for Hope"

Registration Fees:
$30 for individual adult (includes shirt); $20 hike only
$100 for family of 4 (includes 4 shirts)
$25 for children 6-16 (includes shirt); $15 hike only
Child 5 and under fee - no shirt (unless purchased separately)

Shirt Sizes Available: Youth, SM - XL and Adult: SM – 3XL, Shirts sold separately for $10

What is Fragile X Syndrome (FXS)?  Fragile X Syndrome is a genetic condition and the leading cause of hereditary intellectual disability worldwide.  Most males with FXS have moderate intellectual disability and most females have mild intellectual disability.  Individuals with FXS may also have anxiety, hyperactive behavior, and attention deficit disorder. About one-third of individuals with Fragile X also have features of autism spectrum disorders that can impact communication and social interaction.

Over 1,000,000 individuals nationwide have, or are at risk, of developing a Fragile X disorder.

About the trail: 

Our region is blessed with world class natural features - three rivers and a striking range of ridges - undulating through a unique desert landscape. Rapid development has been poised to alter this landscape forever.

    In 2007, a group of citizens and organizations, including Friends of Badger Mountain, formed the Ridges to Rivers Open Space Network. Working along with public officials, the mission was to identify a more comprehensive, region-wide approach to balancing the public's desire for open space and trails, in concert with the rapid growth” (Ridges to Rivers, Open Space Network). The length of the trail is approximately 3 miles.

 

When our group of six women came together for this fundraiser we had no idea of the positive impact it would have on us.  We came together as strangers, as family, and as friends, but the bond that we have created together has become an integral part of our lives.  Through working together we’ve discovered so much about Fragile X Syndrome, the community, and each other.  We have made a lifetime commitment to do our part in helping find a cure for Fragile X.

More Details:

We will have several kids’ activities including a bounce house, face painting, and a fire truck!

Raffle with lots prizes!

Bring a picnic lunch or purchase lunch from one of our food vendors!

We will have live Music for everyone to enjoy!

 

It will be a terrific day with family and friends!  Invite your furry pals as well! (We love all animals, but for the safety of others please keep your pets on a leash and clean up after them)

 

For questions about the hike please contact Allison Coyne at 509-460-7584 or send an email to fxhikeforhopetc@gmail.com