National Fragile X Foundation

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Approximately 100,000 individuals in the United States have fragile X syndrome, many of them undiagnosed.
More than 1 million people have or are at risk of developing a Fragile X-associated Disorder.

The National Fragile X Foundation supports and connects families affected by Fragile X, providing educational and emotional support, promoting public and professional awareness, and advancing research toward improved treatments and a cure for Fragile X.

What is Fragile X?

  • fragile X syndrome (FXS), the most common cause of inherited intellectual disability; it causes behavioral disorders and speech and language delays that manifest in early childhood.
  • fragile X-associated tremor/ataxia syndrome (FXTAS), an adult onset neurological disorder causing tremors, balance and memory problems, and cognitive decline.
  • fragile X-associated primary ovarian insufficiency (FXPOI), a condition that causes irregular menstrual cycles, infertility, and premature menopause in females of reproductive age.

The NFXF needs your help!

Help us carry out our wide-reaching mission by raising money through your own personal fundraising page!

For more information about supporting the NFXF, contact


We cannot do this work without the support of generous donors. Thank you for taking the time to make a big difference for those affected by Fragile X!



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