Families and individuals worldwide struggle with diseases like Tay-Sachs everyday. They face the reality that their children will never run, skip or jump on the playground or get to dance at their prom. Sadly, these diseases are always fatal in the infantile and juvenile forms. The adults affected with the late-onset form will inevitably spend their lives struggling with their ability to communicate, relying on others to help them get around and always having to ask for assistance. Can you imagine a loved one facing this crisis?
Diseases such as Tay-Sachs, GM1 and Canavan deteriorate the brain’s ability to function normally. With lysosomal storage disorders like Tay-Sachs, brain cells aren’t able to recycle the fat that naturally occurs in the cells, which results in the progressive loss of one’s ability to move, swallow and interact with the world. With the leukodystrophies like Canavan disease, it is the build-up of waste that deteriorates the connections between nerve cells leaving the brain slowly unable to communicate with the rest of the body.
National Tay-Sachs & Allied Diseases Association helps affected individuals and families lead life to the fullest while pursuing treatments, cures and prevention for these devastating diseases. NTSAD is a 501(c)(3) organization that relies on private philanthropy to sustain its mission to offer hope to those struggling with these diseases worldwide.
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