Welcome to the 8th Annual
"Power To Cure Huntington's Disease"
Motorcycle Poker Run
Registration Page
Join us for a scenic 3 to 4 hour ride and poker run at 10 a.m. on Saturday March 26th. Riders will depart and end at Hacienda Harley Davidson, 15600 N. Hayden Road in Scottsdale (E. Frank Lloyd Wright Blvd. and N. Hayden Rd.). After heading south on the 101 Pima Freeway and crossing the beautiful Salt River, and then heading East on the 202 Red Mountain Freeway, riders will exit and head North on Usery Pass/Ellsworth Road. Note the majestic beauty of Pass Mountain on the right in the Tonto National Forest and take a deep breath as you pass Saguaro Lake to see how many fish you can smell! Next it’s South on Beeline Highway 87 and North on N Ft. McDowell Road and E. Mojave Road to watch the World Famous Fountain Hills Fountain! Hopefully it will be spouting 560 feet straight in the air for your enjoyment. Next head North up Fountain Hills Blvd (E. McDowell Mtn. Road) past the scenic McDowell Mtn. Regional Park on the left to E. Rio Verde Drive (E. Dynamite Blvd.). This will slowly take us back into civilization once again. Be sure to check out all of the Horse Ranches along this road and the Troon North Golf Club too. Heading south on N. Scottsdale Rd. and the 101 Pima Freeway again we sadly leave nature’s beautiful scenery and head back to Hacienda Harley Davidson for a FREE lunch, sharing of stories, and raffle drawings! Don’t miss the excitement!
Please join us as we ride to help those who have been challenged with:
Juvenile & Adult Onset Huntington's Disease
in Arizona
Pre-Register Online before Noon Friday March 15th
to receive a FREE commerative ride pin on the 26th!
Raffles tickets will be sold day of ride for
great gifts and a 50/50 raffle.
HUNTINGTON’S DISEASE AND JUVENILE HUNTINGTONS' DISEASE
Huntington’s Disease (HD) is an inherited, degenerative disorder of the brain. It relentlessly destroys the individual’s ability to think, reason, remember, make sound decisions, and act in a socially-acceptable way. The affected person’s ability to walk, talk and swallow are also adversely affected. Many are wrongfully arrested for being intoxicated. It’s no wonder that the suicide rate for those with HD is 8-10 times higher than the national average. Each child of an affected parent has a 50/50 chance of inheriting the disease themselves. Juvenile Huntington’s Disease (JHD), a more devastating form of this disorder, affects infants, little children, and teenagers as well.
Specializing in Huntington's Disease
The Hereditary Neurological Disease Centre (HNDC) is a non-profit 501(c)(3) charity based in Wichita, Kansas. It is now branching out to help volunteers in Arizona empower local individuals and families struggling with Juvenile-onset and adult-onset Huntington’s Disease through Compassionate Care, Education and Hope! The HNDC has successfully evolved, out of several other like-mind organizations throughout the years, who were originally established to help individuals and families struggling with HD in Wichita in 1967. It has continued to grow and enhance its mission and now provides exceptional care, expertise and assistance for those in Kansas, regionally and now in Arizona!
In addition, the HNDC is also a member of the Huntington Study Group (HSG) and continues to play an active role in conducting clinical research trails on potential HD treatments and therapies. For additional information on JHD or HD, please contact Phil Hardt at 602-309-3118 or phardt1@cox.net. For additional information on the HNDC contact Greg Suter at 888-232-4632 or hndcentre@aol.com . May God bless everyone who has Huntington's Disease. Thank you for your support.