Emily Smith's Fundraising Page
Page Creator: Emily Smith
Event: 2009 Butterfly Walk for Cockayne Syndrome - North Carolina (2)
Event Starts: Oct 17, 2009
Team Name: Team Abby
Fundraising Page Image
Tell everyone about the Butterfly Walk!
About my nonprofit:
Share & Care Cockayne Syndrome Network
Fundraising target: $5,000
So far I have raised: $4,649.19
Fundraising progress
25% 50% 75% 100%
Share this page
Join this team
My personal message:

Thank you for visiting my fundraising page!

Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.
 

The 2nd Annual Butterfly Walk will be held at 5834 Bur Mill Club Rd., Shelter # 5, Greensboro, NC  27410.  Registration begins at 8:30 a.m. with the walk beginning at 9:30 a.m.  Register before the event online by clicking, "Join our Team" and get a free t-shirt!!

Cockayne Syndrome (CS) is a rare genetic disorder characterized by poor growth, microcephaly, progeria (premature aging), sensitivity to sunlight, moderate to profound developmental and neurological delays, and a shortened lifespan.

 Funds received from the 2009 National Butterfly Walk enables The Cockayne Syndrome Network to continue its mission to provide educational programs, exchange of information, and also support research.   The Share & Care Cockayne Syndrome Network and our Medical Advisory Board members are proud to announce we have coordinated the first scientific conference focused only on Cockayne Syndrome, which is going to be held September 2009.  We will have close to 40 leading researchers in the field of CS from around the world gathering in Boston, Massachusetts to share information that will assist researchers and increase interest in helping CS patients.

Visit www.cockaynesyndrome.org to find out more about this devastating disorder.

Please share this page with others.  Many thanks for your support.

Sincerely,

The Smiths


Online Sponsors to date:
Display Name Date Amount  Comment
Uncle Rick & Aunt Susan 11/15/2009 $50.00 Our beautiful Princess. We love you! 
JT 10/22/2009 $300.00 Proud to know you! 
Brad Rhodes 10/22/2009 $50.00 We are thinking of you guys! 
Carolyn and Thom Wiley 10/17/2009 $50.00 We wish we could be walking with you today! 
The Secretary of War 10/17/2009 $50.00 Keep on fighting, Abby 
Bendte Fagge and Dave Massung 10/16/2009 $20.00 We'll be thinking of Abby and your family tomorrow! 
Jimmy and Sue Beeson 10/16/2009 $50.00 We're praying for you, Abby. 
Dave Heller and Jennifer Greer 10/16/2009 $35.00 Friends of Sandy & Dave and fans of Abby 
Daniel, Jennifer, Charlotte and Brant Taylor 10/15/2009 $100.00 Thinking of your family. :) 
Eliz-a-beth 10/15/2009 $20.00 Praying for your family. 
Julie Ingle & Kyle Smith 10/15/2009 $50.00 God loves you.  
Fellow Rosewood Grads Class of '93 10/14/2009 $50.00 Hope this helps - All the best 
Tara 10/14/2009 $20.00 You all are in my heart, Brent!  
Steve & Victoria Linder 10/14/2009 $100.00 Brandi, thank you for sharing this story; may God be with this precious child & family! 
Matt and Lise Podwika 10/14/2009 $30.00  
Dawn O'Banion Dobbins 10/14/2009 $20.00 Hope this helps~God Bless 
Fellow Rosewood Class of '95 Grad 10/14/2009 $5.00 GO ABBY! 
Telena & Morgan Cole 10/14/2009 $20.00 We're friends of Aunt Suzanne. God Bless! 
Friends 10/14/2009 $100.00  
Kevin, Sarah, and Taylor Dozier 10/13/2009 $50.00 "Happy to be with Team Abby" 
Anonymous 10/13/2009 $50.00 Abby is such a blessing to everyone she comes in contact with! 
Tony and Kay Smith 10/7/2009 $50.00 With love to our precious granddaughter 
Carol Lee 10/6/2009 $25.00 With you in the spirit... 
Kendra Davis 9/30/2009 $25.00 Wish I could walk with you, unfortunately I will be out of town that weekend.  
Joy Todd 9/25/2009 $100.00 I'm with you in spirit. Have a great day!! 
Jennifer & Jason Powers 9/25/2009 $25.00 We hope we can help raise more money and awareness. God bless! 
Bullioneers, NPO, Inc. 9/24/2009 $250.00 I wish I could add some more zero's! Good luck and go Team Abby! 
Mema and Ted Reiss 9/23/2009 $50.00 Thinking of you with a loving heart always 
Mike & Kathy Leach 9/22/2009 $30.00 "Now faith is the substance of things hoped for, the evidence of things not seen." Hebrews 11:1  
Rodney Brewington 9/18/2009 $20.00 We are with you Abby! "Go Eagles"! 
Janet Winn 9/18/2009 $20.00  
Trevor & Courtney Prevette 9/15/2009 $25.00 Trevor said he would give Abby all his "Gold Dollars"! 
Robert, Laura, Ben and Cooper Owen 9/15/2009 $25.00  
Debi and Wayne Hobbs 9/14/2009 $100.00 Abby is such a joy! 
John and Lynn Massey 9/11/2009 $50.00 Go Team Abby!!! 
Rita Christie 9/10/2009 $25.00  
Mike and Elaine Fansler 9/10/2009 $25.00  
friend 9/10/2009 $25.00  
Aunt Janet and Uncle Amir 9/10/2009 $50.00 Lots of love and hugs across the miles... 
Pat & Earl Trulove 9/10/2009 $50.00 Abby is loved by many!! 
A. Abraha 9/9/2009 $25.00 Great cause! 
Kris-Tina Simmons 9/9/2009 $20.00  
David, Janet, and Chase 9/9/2009 $25.00 Love and Miss You! 
Suzanne, Chris, Julia and Meredith 9/9/2009 $15.00 Love you all! 
Elaine Pritchard 8/28/2009 $50.00 What a loving, generous heart you have Emily! Love to all, Elaine & Charlie 
Anne Todd 8/22/2009 $100.00 We love you all! Mom 
Alyson 8/21/2009 $50.00 Go Em! I'm very proud of you, my friend. 
Sandy & Dave Bjorkback 8/21/2009 $50.00 What a wonderful thing to do Em! I know you'll be running strong for Abby. for Abby! 
Anonymous 8/15/2009 $50.00  
Verisign secure site-- click to verify
* Total raised online: $2,575.00
Amount raised offline: $2,074.19
Grand Total: $4,649.19
Edit your page
Add images, your story, videos, tags, and more.
  rss logo  | more about RSS  

  

 add to Del.icio.us   

If you find anything on this page offensive, please report it to us in confidence by clicking here

* - Transaction fees apply to this amount.