Charity banner image
Alexandra Spear's Fundraising Page
Page Creator: Robert and Denise Spear
Event: Step Forward to Cure TSC - Liverpool, NY
Event Starts: Sep 26, 2009
Team Name: AllyKate
Training buddies: Denise Spear, Alexandra Spear, Brendan Spear
Fundraising Page Image
Ally with her brother Brendan
About our nonprofit:
Tuberous Sclerosis Alliance
The mission of the TS Alliance is to find a cure for tuberous sclerosis complex (TSC) while improving the lives of those affected. Your particiption plays an integral role in carrying out this mission....
Show More >>
Fundraising target: $3,000
So far we have raised: $18,119.00
Fundraising progress
25% 50% 75% 100%
Share this page
Join this team
Our personal message:

Thank you for visiting my Personal Fundraising Page. Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to my fundraising efforts. Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!

TEAM ALLYKATE

Hello all. As most of you know (and some of you dont) our seven year old daughter Alexandra was born with a disease called Tuberous Sclerosis Complex. In a nutshell this disease is a genetic defect that affects the brain,eyes, kidneys, heart, lungs, and skin. Ally was born with a countless number of rhabdomyomas (tumors on her heart). Thank God they went away on their own without surgical intervention. Alexandra suffers from a seizure disorder where she seizes numerous times a day. Enduring a sedated MRI/EEG at least once a year, our daughter is a bona fide trooper. She has learning and developmental delays that she will have for the rest of her life. Alexandra is not potty trained, cannot dress herself, cannot follow simple demands from her parents or teachers. Her fine and gross motor skills are that of a 2 or 3 year old.  Ally attends Little Village Hagedorn School for Special Needs in Seaford and has made amazing progress in the 4 years she has been a student there. Without a doubt Ally is the sunshine of our lives.

As of today there is no cure for TSC but there is constant ongoing research to find one. Ally and her family will be walking in a walkathon on September 26th in Liverpool NY. We are asking for donations to help us. If you prefer to write a check you can write it to TS Alliance and send it to Rob and Denise Spear  c/o Team AllyKate 1769 Andrea Rd. East Meadow NY 11554. Any amount would be greatly appreciated and we thank you in advance. To find out more about our cause please look at the website www.tsalliance.org

Online Sponsors to date:
Display Name Date Amount  Comment
Doris Shurman 9/30/2009 $25.00  
Maureen Kash 9/21/2009 $50.00 We can't wait to see the Spears on Friday! 
The Donoghues Ed, Dianne Kevin and Matt! 9/17/2009 $50.00 Great Work for a Great Cause-Go Team AllyKate 
Patti Behrend 9/15/2009 $20.00 It is my pleasure to give a donation to such a great cause! 
Anonymous 9/15/2009 $10.00 Maureen Kash is a great friend of ours and we wanted to help, as she speaks so highly of you. 
Vin Precipuo 9/8/2009 $20.00  
Anonymous 9/2/2009 $150.00  
The Seiling Family 9/1/2009 $50.00 Thank you so much for raising awareness for TSC, you are an inspiration to our family.  
Lonnie & Jaime Green 8/25/2009 $50.00 Good Luck 
Lydia 8/23/2009 $25.00 Love & Luck to a beautiful family! 
Bill & Susan Youngson 8/20/2009 $100.00 Great Job Guys! Good Luck 
Jimmy and Colleen Conlon 8/20/2009 $100.00 Sorry we can't be there tonight 
Ed & Lizette Rieger 8/20/2009 $10.00 Sorry we couldnt be there tonight. 
Elizabeth Cusano Walsh and family 8/19/2009 $50.00 Good luck and God bless always! 
Chuck D'Agostino & family 8/18/2009 $50.00 May God bless you all and best of luck! 
Scott, Deborah, Josh, Jack and Jonathan Cohen 8/17/2009 $50.00 Good Luck 
Jeffrey & Sondra Toscano 8/17/2009 $50.00  
Joseph Dasaro 8/10/2009 $50.00 good luck 
Paul & Susan Napoli 8/7/2009 $100.00 Good Luck 
Stacy, Chris, Abby and Maddy Washousky 8/5/2009 $20.00 Best of luck! 
Ron, Donna, Ashley and Thomas Pfeffer 8/4/2009 $50.00  
The FREIN Family 8/3/2009 $50.00 GODSPEED 
Chris Ingram and Jenna Nolan 8/3/2009 $100.00 Good Luck!! Not sure if we will be able to make the benefit, but wanted to contribute! 
Danny O'Keefe 8/3/2009 $100.00 All the Best 
Christopher Airey 7/28/2009 $40.00  
Helen Verveniotis 7/26/2009 $10.00 Good luck! 
christopher reardon 7/22/2009 $50.00 keep up the good work guys  
Cristina Almazan 7/22/2009 $25.00 Good luck..keep smiling 
LaShaun Carr 7/20/2009 $100.00 Good Luck, I wish the best for the Spear Family 
Dawn Darish 7/5/2009 $25.00 keep up the good work 
Christina Cooney and family 6/30/2009 $20.00 Good Luck!Love You Ally!!! 
Anonymous 6/30/2009 $100.00 In Memory of Pete Timmes and Mike Romano 
Elise Olson 6/18/2009 $100.00 It's a pleasure to know such a wonderful family!  
Shannon and Jenna Carroll 6/16/2009 $15.00 Good Luck!!!! 
Michael Peluso & Alyssa Irish 6/16/2009 $50.00 Love you guys. Good luck! 
Patty Holihan and Matt Pignataro 6/15/2009 $50.00 Good Luck 
Nicole Callan 6/12/2009 $25.00  
Rob & Shannon Mangano & Family 6/11/2009 $125.00 We love you guys! Our prayers are with you! 
Brien Fletcher 6/11/2009 $25.00 Good luck  
Pat Callan 6/11/2009 $25.00  
The Perfetti Family 6/6/2009 $50.00 We are praying for a cure. 
Paul & Corinna Divver 6/5/2009 $50.00  
The Convey Family. Barbara, John, Chris & Erin 6/3/2009 $100.00 Good Luck... GO TEAM ALLY!!! 
Barbara & Phil Karda 6/2/2009 $25.00 Good Luck! 
The Hendler Family 6/1/2009 $25.00 Good-Luck...Love You 
Kim,Gary,Kyler, & Teegan Rowe 6/1/2009 $100.00 Good Luck!!! 
Rob Maksym 6/1/2009 $25.00 Good Luck 
Giacomo Sciuto and Annie McKenna 6/1/2009 $25.00 Good Luck! 
Brandon Leonard 6/1/2009 $25.00 Good luck!! 
MJ Stuparich 5/31/2009 $175.00 GOOD LUCK YOU GUYS!!! I pray for Ally everyday!!! 
Joe Pig & Ang V 5/31/2009 $75.00 GOOD LUCK SPEARS!! 
Kristi McCaffrey & family 5/31/2009 $25.00 Best of luck! 
Megan Kash 5/31/2009 $50.00  
Barbara and Bruce Beaney 5/31/2009 $200.00  
Kristin Beaney Chisum 5/31/2009 $100.00 Best Wishes! 
Meg 5/30/2009 $10.00  
Bryan Brown & Lisa Graffeo Brown 5/30/2009 $100.00 Sending many prayers, lots of luck & tons of love!!! 
The Zaso Family 5/30/2009 $500.00 Good Luck! We hope you reach your goal and then some!!!! 
Michelle Costantini 5/30/2009 $25.00 You're in my prayers. Good luck!! :)  
Jackie Baiera-Ghedine and family 5/30/2009 $50.00 Good luck - bless you and your family 
The Vasilakis Family 5/30/2009 $50.00 Good luck!Here's hoping you reach your goal! 
Erin and Ryan Kash 5/30/2009 $25.00 We cannot wait to see you all, we would love to walk with you. 
Madeleine Palladino 5/29/2009 $100.00 Hope you reach your goal. Good Luck!!! 
Tara Carroll 5/29/2009 $30.00 Good Luck!! 
Rob, Erica, Christopher and Jacklyn Carroll 5/28/2009 $75.00 Good Luck!! WE Love You Guys!!!!! 
Jane, Melina & Gaby 5/28/2009 $25.00 Good luck guys  
steve carroll 5/28/2009 $50.00 Good luck 
Joe and Joan Stepinowski 5/28/2009 $50.00 Good Luck 
Kerri Jording & Mike Ahern 5/28/2009 $50.00 Good luck with the walk and keep up the cause! 
John Ingram and Tina Buck 5/28/2009 $75.00 Good Luck with the walk!!!! Love you guys! 
Mary Harms and Brian Behr 5/28/2009 $150.00 We pray for Ally every day, Good Luck! 
Anonymous 5/28/2009 $200.00 Ally & Brendan are lucky to have two loving parents 
The NYC Kennas 5/27/2009 $100.00 You rock Ally! And so do your parents!!! 
KIM MANGO 5/29/2009 $30.00 GOOD LUCK! MISS YOU GUYS!! 
Rich Lisa Evan & Ava Passariello 5/27/2009 $30.00 Our Prayers are with You. Good Luck on the walk 
Ryan Gale 5/27/2009 $25.00 Good Luck Spear family 
Barbara & Herb Karen 5/27/2009 $25.00 Good Luck  
Barney & Carol Murtagh 5/27/2009 $25.00 Good Luck on a good cause,love to all four of ya! 
Jamie Beth Wiegand 5/27/2009 $25.00 Good luck in reaching your goal! A beautiful cause! 
The Babor Family 5/27/2009 $25.00 Good Luck 
John, Mindy, Johnny, Summer Reed 5/26/2009 $50.00 Good Luck to You Guys / All The Best 
Matthew and Olivia Kondrup 5/26/2009 $50.00 Best of Luck on your walk!! 
Jill Kerschensteiner 5/26/2009 $25.00 Good Luck!!! 
Karen Miller 5/25/2009 $20.00 Good Luck Rob and Denise and Alexandra, We wish you the best of luck 
PJ, Janine, Eric and Daniel Webber 5/25/2009 $100.00 Have a great walk! LET'S FIND A CURE!! 
The Cody's 5/25/2009 $50.00 What a great thing! We love you guys and wish nothing but the best! 
Michele Ahlers RN 5/24/2009 $25.00 Even with you and your family going through this you still manage to smile. We love you at WUH 
Cathleen and James Walsh 5/24/2009 $50.00 Good Luck! We love the Spear Family!! 
Kelly Brown 5/24/2009 $30.00 Good Luck!!!!! 
M Timothy Bono 5/24/2009 $25.00 good luck! 
Eileen Baumgaertner 5/24/2009 $20.00 Best of Luck! 
Chris Ebert & Family 5/24/2009 $100.00 Good Luck . 
robert delaney 5/24/2009 $100.00 A great casue 
John, Mary, John Anthony and Matthew Bartunek 5/24/2009 $25.00 Best wishes and good luck... 
Ken, Alison, Kyle & Christian Pellegrino 5/24/2009 $25.00 What a great cause!! Good luck with the walk! 
Debbie & Tom Hoar 5/24/2009 $15.00 Good Luck !!! Best wishes to the Spear family! 
Verisign secure site-- click to verify
* Total raised online: $5,725.00
Amount raised offline: $12,394.00
Grand Total: $18,119.00
Edit your page
Add images, your story, videos, tags, and more.
  rss logo  | more about RSS  

  

 add to Del.icio.us   
If you find anything on this page offensive, please report it to us in confidence by clicking here

* - Transaction fees apply to this amount.