Ehlers-Danlos Syndrome
Page Creator: Angela Griswold
Page Closes: Dec 31, 2009
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Encourage, Dream, Support
About my nonprofit:
Ehlers Danlos National Foundation - California
Description: Ehlers-Danlos National Foundation creates resources for those affected by the connective tissue disorder Ehlers-Danlos Syndrome.

Mission: * Creating and distributing accurate...
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Fundraising target: $1,000
Total raised so far: $420.00
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My personal message:

I have Ehlers-Danlos Syndrome hypermobility type, but I can still make a difference! 

What is EDS?

Individuals with EDS have a defect in their connective tissue, the tissue that provides support to many body parts such as the skin, muscles and ligaments.

Hypermobility is the dominant clinical manifestation.  Recurring joint subluxations and dislocations are common occurrences.  The skin involvement (hyperextensibility and/or smooth velvety skin) as well as bruising tendencies in the Hypermobility Type are present but variable in severity. 

Chronic joint and limb pain is a common complaint amongst individuals with the Hypermobility Type. Musculoskeletal pain is early onset, chronic and may be debilitating
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What is EDS for me?

Severe pain is an everyday occurance for me.  My joints (wrists, knees, shoulders, jaw, neck, back, hips, ankles, fingers and toes) pop out of place nearly everyday.  I have to do physical therapy, rest, take medications, go to many doctor appointments, wear an abudance of joint braces, and use a scooter or cane to get around.  I really hope that one day, they will find a cure.

 

Donating through this website is simple, fast and totally secure

Many thanks for your support,

 

Angela Griswold                                                                                       "Every demonstration of courage and strength gives others courage and strength."

 

P.S. Don't forget to forward this to anyone who you think might want to donate too!

 

 

 

 

 

 


Online Donors to date:
Display Name Date Amount  Comment
Anonymous 1/22/2009 $5.00  
Dad and Bonnie 12/6/2007 $100.00 Love and best wishes! 
Judy Yaklin 12/6/2007 $15.00 Lots of thoughts and prayers! 
The Lakes family 11/7/2007 $50.00 We love you, neighbor and friend. You inspire us everyday 
suzanne suprock 10/29/2007 $50.00 I'm praying for you. . .keep your beautiful smile! 
Brandi Thompson 10/22/2007 $50.00 Zebras do exist! 
Ellen and Bob Chio 10/5/2007 $50.00 With our support and love -- God Bless 
Cheryl Hickerson 10/4/2007 $100.00 Photographer of the picture is awesome! 
Verisign secure site-- click to verify
* Total raised online: $420.00
Amount raised offline: $0.00
Grand Total: $420.00
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