We've come a long way.
The future is bright for those affected.
The children who had no hope, now thrive. Infants that were given up on, today survive. Our children now have dreams and a healthy outlook. The future that once belonged only to their peers, now includes them.
The ARPKD/CHF Alliance generated the largest research study in the world for this disease. In addition, we supported research that identified the cause of Congenital Hepatic Fibrosis (CHF).
Disease Specific Research is Important.
Support our 2012 goals which include newborn screening, professional education to end the fatalistic outlook that lingers and patient guidelines,
in 3 easy steps.
1. Click the GET STARTED button.
2. Create a personalized page with your story and photo.
3. Email your family, friends, and colleagues--ask for their support, watch progression.
Conider linking to facebook and other social networks, or adding a Flyer or Brochure.
Need help? Contact us at 1-800-708-8892 or info@arpkdchf.org.