Hearts Beating ARPKD/CHF
Babies born with ARPKD/CHF can't speak for themselves, but their parents know the heartache of this disease each and every day.
The uncertain future of this chronic and progressive kidney and liver disease is stressful. There are no medical treatments for our children. Parents want to do everything they can to improve chances of normalcy and make a difference for their child and all those affected by ARPKD/CHF.
The ARPKD/CHF Alliance has generated the largest research study in the world for this disease and funded research, which identified the cause of Congenital Hepatic Fibrosis (CHF)! These are huge steps for a small organization, but we're not done nor suprised because LOVE can do great things! Every parent of an ARPKD/CHF child hopes for a better future...and why shouldn't they?
Disease specific research is important when ANY child is affected, but also being a rare disease shouldn't hinder treatments or outcomes!
Please support our goals to improve patient care and outcomes for all those affected by Autosomal Recessive Polycystic Kidney Disease
and Congenital Hepatic Fibrosis, in 3 easy steps.
1. Click the GET STARTED button.
2. Create a personalized page with your story and photo.
3. Email your family, friends, and colleagues--ask for their support, watch progression.
Conider linking to facebook and other social networks, or adding a Flyer or Brochure.
Need help? Contact us at 1-800-708-8892 or info@arpkdchf.org.
