Description: Who We Are: The American Syringomyelia Alliance Project, Inc. (ASAP) is a non-profit, 501(c)(3), member supported organization, chartered in May 1988. Don and Barbara White started ASAP as a grassroots organization in their spare bedroom due to the frustration they encountered when Barbara was first diagnosed. Since then ASAP has become a nationwide clearinghouse for information regarding syringomyelia (SM), Chiari (CM) and related disorders. ASAP sponsors an annual medical conference linking the top medical professionals in the field with those affected. ASAP reviews and funds research annually. In addition, they promote awareness by hosting community fundraisers throughout the nation. Together with its membership, ASAP works toward fulfilling its mission.
Mission: ASAP's mission is "to improve the lives of persons affected by Syringomyelia, Chiari Malformation and related disorders while we find the cure."
Our Vision: We envision a world without the devastating effects of syringomyelia, Chiari Malformation and related disorders.
