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Annie Lucatuorto's Fundraising Page
Page Creator:
Annie Lucatuorto
Event:
Climb to Conquer SADS
Event Starts:
Jul 10, 2009
Annie and Chloe at Mt. Rainer
About our nonprofit:
Sudden Arrhythmia Death Syndromes Foundation
For more than 12 years, the Sudden Arrhythmia Death Syndromes Foundation (SADS Foundation) has worked to save the lives and support the families of children and young people genetically predisposed to heart...
For more than 12 years, the Sudden Arrhythmia Death Syndromes Foundation (SADS Foundation) has worked to save the lives and support the families of children and young people genetically predisposed to heart rhythm abnormalities. Each month staff hear from new families who have lost a child or loved one to SADS conditions like long QT syndrome, Brugada syndrome, and cardiomyopathies. These arrhythmias may show no symptoms and often leave no trace in an autopsy. When there are warning signs, they are: Fainting or seizure during exercise, excitement, or startle; family history of unexpected, unexplained sudden death in the young; consistent or unusual chest pain and/or shortness of breath during exercise. If diagnosed early, many of these conditions can be treated easily, saving lives. The Foundation operates three programs: public awareness of SADS' warning signs, patient and family support, and medical professional education. More than 10,000 families use Foundation programs annually. Thank you for considering a donation to the SADS Foundation today.
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Fundraising target:
$3,000
So far I have raised:
$6,330.00
Fundraising progress
25%
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My personal message:
Dear Family and Friends:
As most of you know, our daughter Annie was diagnosed with LQTS1 on January 12, 2007, at the age of 10, after she fainted in a swimming pool. LQTS1 is a rare but serious genetic heart arrhythmia that has been passed down from Cathy, who like Annie never knew she had it until Annie was diagnosed. Since then, we learned that Aunt Beth, Aunt Megan and Cousin Reese also have this condition. This condition results in the deaths of over 4,000 people each year, many of whom are children like Annie who die never knowing they had the condition. There is no cure for this condition today. With the help of a daily beta blocker, and life style management (i.e. no sports, or exercising that may cause an arrhythmia), Annie is able to live a somewhat restricted, but healthy, and happy life.
Through the SADS Foundation, Cathy and I were able to get further awareness, education, and meet a network of families like ours who have LQTS. The goal of the SADS Foundation includes raising awareness in the medical industry as well as the general population, which is so important to ensure that children and adults that have this condition find out they have it so they can manage it before it is too late. Providing patient and family support; research and advocacy are other important goals of this foundation. Cathy and my goal is one day there will be zero annual deaths due to this condition and a cure for those who have it. To help bring that day closer to reality, we please ask you to join us in contributing to the important work the SADS foundation does in the name of Annie, so that together we can save lives. To help, please support us in sponsoring a climber at the annual “Climb to Conquer SADS” this July at Mt. Rainer.
Thank you and God Bless,
Anthony, Cathy, Annie, Chloe, and Anthony Lucatuorto
Please see the link below for more information about Climb and the SADS Foundation.
Climb and the SADS Foundation Information
Thanks to Ed and Barbara Wills for their $50 donation!
Online Sponsors to date:
Display Name
Date
Amount
Comment
Kristen McGlinchey
8/10/2009
$20.00
Great job!
Moccaldi Family
7/30/2009
$100.00
Great job Annie
The Mueller Family
7/20/2009
$100.00
You're doing great! What an inspiration!
The Mangels' Family
7/20/2009
$100.00
Great Job Annie! You are part of a wonderful family!!
Al & Nancy Cresser
7/13/2009
$50.00
Good Luck & Best Wishes
Jason & Roberta Scott
7/11/2009
$50.00
Have a great summer!
Laurie & Pete Wills
7/4/2009
$20.00
Great job Annie- We are so proud of you!
Noelle and Robert Geiger
7/2/2009
$75.00
Annie: You inspire us to learn more about SADS and support efforts to find a cure.
The Keach Family
6/30/2009
$100.00
Great job Annie!
Aunt Megan and George
6/28/2009
$100.00
Love you Annie!!!
Kathy & Billy Northrop
6/26/2009
$25.00
Annie--You are such a role model to those around you!!
Don and Kerry Pysola
6/26/2009
$200.00
Have fun climbing and hold on tight!
The Costa family
6/26/2009
$50.00
Keep it up Annie
Denise and Mounir Tahali
6/25/2009
$100.00
Go for it ! Anything is possible.
Lisa Muurisepp
6/23/2009
$20.00
You should be very proud of yourself, Annie!! Great Job!!
Lisa and Brett Mallen
6/23/2009
$150.00
Our teenage rock star!
Cynthia Yoskowitz and Family
6/23/2009
$150.00
Keep reaching for the stars!!
The Passela Family
6/22/2009
$50.00
We're proud of you Annie.
Gloria Bradford
6/22/2009
$25.00
Keep climbing.I'll be rooting for ya!!
Eddie & Erik Wills
6/21/2009
$20.00
Your in our thoughts!
Nana And Papa
6/21/2009
$300.00
All our Love!!
Meyer Family
6/21/2009
$100.00
Keep on climbing. You should be proud of yourself. The Meyer Family
Tess and Hailey
6/17/2009
$25.00
We wish you all the best :)
Amy Kelley
6/17/2009
$25.00
Your uncle Peter told me about this. I'm happy to support your efforts and hope they find a cure.
Rizzuto Family
6/17/2009
$250.00
God bless and stay positive
Aunt Joanne,Uncle Dick ,Rick,Matt,ac & Ash.
6/16/2009
$100.00
With our loving support
Lou, Jeanne, Devin, Charli, Nicki, Sidney & Petter
6/15/2009
$125.00
Annie, you are an awesome young lady. We admire your strengh and courage :)
Aunt Annemarie and Uncle John
6/15/2009
$100.00
All our Love always!
Uncle Dan and Aunt Linda
6/15/2009
$100.00
All our love and support always.......
The Chambers Family
6/14/2009
$100.00
Glad to support you!!
The Mallen & LoVerde families
6/12/2009
$100.00
We're glad to help this cause for you, Annie
Mike Corcione & Family
6/12/2009
$100.00
Glad to help....Good luck Annie!
The Perrino Family
6/12/2009
$300.00
Annie, you're the best. Have a great trip.
Sheryl Bernstein & Roger Morris
6/12/2009
$50.00
Interiors by Anne Marie and the Virgilio family
6/12/2009
$120.00
you are a very special girl-keep up the heoric work !
Brian Seims
6/12/2009
$150.00
Good luck for such a great cause
The Canale Family
6/12/2009
$100.00
Good Luck in reaching your goal !
Pete and Stella Lucatuorto
6/12/2009
$200.00
In honor of our beautiful Annie
Kelly, Scott, Emma & Jake Wilson
6/12/2009
$100.00
For a sweet girl !!
The Orski Family
6/12/2009
$75.00
"Annie, you rock"
Jeff, Colin and Reese Wills
6/12/2009
$50.00
You're the best!
Aunt Beth & Uncle Jeff
6/12/2009
$100.00
You are our Angel Annie!We love you!
Piotrowicz Family
6/12/2009
$250.00
Annie, you are a beautiful girl!
The Oross Family
6/11/2009
$100.00
Annie, your courage and strength inspires us all!
Diane Filosa & Family
6/11/2009
$100.00
Here's to hoping that every little bit counts...
The Hogan Family
6/11/2009
$25.00
It's our pleasure to help you Annie!
Jack and Candace Sweeney
6/11/2009
$50.00
Laura Bidonde-Sofia
6/11/2009
$30.00
Glad to help...
The Krivacek Family
6/11/2009
$100.00
We're proud to support this great cause!
Pat Hayes
6/11/2009
$25.00
Pleased to help
Donna Dubinsky & Family
6/11/2009
$50.00
Everyday that passes is one day closer to a cure.....
Lori and Joe Canella
6/11/2009
$25.00
Wish it could be more
Peter Lucatuorto
6/11/2009
$100.00
Keep up the good work SADS
Bella Adams and Family
6/11/2009
$100.00
We are glad we can help!
Kaeli Romero and Family
6/11/2009
$150.00
Anything for my best friend!!!
Anthony and Cathy Lucatuorto
6/11/2009
$1,000.00
Thank you SADS
* Total raised online:
$6,280.00
Amount raised offline:
$50.00
Grand Total:
$6,330.00
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