Thank you for visiting my fundraising page!

I'm raising funds for the Alagille Syndrome Alliance in honor of my daughter Alaina who turned 18 on September 30th. If Alaina hadn't been born with Alagille Syndrome (AGS) I never would have known what it was and would not have founded the Alagille Syndrome Alliance 15 years ago. Alaina is amazing and a real inspiration!

For those of you who are unfamiliar with AGS, it is a rare genetic disorder that affects about one in every 70,000 children born each year or a total of about 4,000 people in the United States. It is a complex multisystem disorder involving primarily the liver, heart, eyes, face, skeleton, and vascular system.

The Alagille Syndrome Alliance is a non-profit organization that serves as the main networking resource and source of information for people with AGS, their families, friends and health care providers. The Alliance operates under three main guiding principles: Supporting AGS Families, Celebrating the AGS Community, and Building a Better Life with AGS. The Alliance's activities include publishing education materials, coordinating AGS conferences and events, supporting AGS research, and increasing public awareness about AGS. The Alliance also helps promote new research on both possible causes and cures for AGS.

I hope you will take a moment to make a donation to the Alliance in Alaina's honor. Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.

Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!

--- Cindy Hahn, Alaina's Mom