Thank you for your participation and support of the Share & Care Cockayne Syndrome Network. By participating in one of the National Butterfly Walks or other events for Cockayne Syndrome (CS) you have a tremendous impact on improving the lives of individuals with CS and their families.
Click on the “Start Fundraising” button to get started. Online Personal Fundraising Pages are passionate, powerful, and persuasive, and you will raise more money, with less effort.
Cockayne Syndrome (CS) is a rare genetic disorder characterized by poor growth, microcephaly, progeria (premature aging), sensitivity to sunlight, moderate to profound developmental and neurological delays, and a shortened lifespan.
Funds received from the National Butterfly Walks and events enable the Cockayne Syndrome Network to continue its mission to help children with Cockayne Syndrome and their familes improve their Quality of Life through Support, Education and Research.