I suffer from a rare disorder called Reflex Sympathetic Dystrophy. The breakdown is that my brain tells my body something hurts when it really doesn't. My body reacts to it by becoming swollen, sensitive to touch, discoloration and hurt with extreme pain. My RSD is on my whole right side of my body affecting my jaw, my elbow, hand, leg and foot. It goes through my whole back ,both of my ribs and my hips. I have had this condition for 4 years and have been under the care of Dr. Sherry at Children's Hospital of Philadelphia. My second year of having this condition I went into a intense therapy treatment for a month in the hospital where they tried to retrain my nerves. Two months later I was experiencing all of the pain again. October of 2008 i went back into the hospital for my second round of treatment and was released in November. As of then I have been in remission experiencing the pain only once in a while. The pain is not fake and many of my friends including myself haven't been able to walk. We would like to get the word out about this disease and it would be a great pleasure if people would like to donate money towards this.
May is Reflex Sympathetic Dystrophy Awareness month, and my friends and I that suffer from this disease would like to get the word out. Be aware that this can happen to anyone and many doctors are not familiar with this condition. It is a hard thing for people to grasp when they look at someone like myself that doesn't look sick and it took me 11 doctors to finally find someone that could make this better.
Thank you for visiting my fundraising site tell people about it and help us find a cure for this disease!!
Courtney Pett