Team Long Island's Fundraising Page
Page Creator: Missy Miller
Event: 2008 Inaugural Butterfly Walk for Cockayne Syndrome - National
Event Starts: May 24, 2008
Team Name: Team Long Island
Fundraising Page Image
Jake, Sammy, Melanie, Katie & Scott
About my nonprofit:
Share & Care Cockayne Syndrome Network
Fundraising target: $17,000
So far I have raised: $26,553.00
Fundraising progress
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My personal message:

TO REGISTER FOR THE TEAM LONG ISLAND WALK

 E-MAIL YOUR NAME, PHONE #  & T-SHIRT SIZE TO:

                                             EITHER

                   MELKATEOL@GMAIL.COM   OR

                  MARIALAZ@OPTONLINE.NET

Hi! 
Welcome to Team Long Island's fundraising website for the 2008 Inaugural Butterfly Walk for CS!


Team Long Island was formed because there are 5 families from Long Island who have children with or have lost children to Cockayne Syndrome. Cockayne Syndrome is a very rare genetic illness, with only around 200 children diagnosed worldwide… can you imagine that there are 5 families affected, right here on Long Island?  Because CS is so rare, there is little research and awareness to speed curative or comfort measures for these beautiful, social children. 
Cockayne Syndrome (CS) is a rare neurodegenerative disease that causes developmental disabilities, loss of major milestones and an extremely shortened lifespan in children. The Share and Care Cockayne Syndrome Network is a worldwide support organization for families of children with Cockayne Syndrome. All funds raised will go to Share and Care to help these families and to support CS research and raise public awareness.  Share and Care is a 501(c )(3) organization, all donations are tax deductible.

Team Long Island is hosting the NY 2008 Inaugural Butterfly Walk for CS.  It will be held on Saturday, May 24, 2008 from 8:00am to 11:00am.  The walk will take place at the Seamans Neck Park in Seaford, NY.  The directions are:  SOUTHERN STATE PARKWAY OR NORTHERN STATE PARKWAY TO (SEAFORD) SEAFORD OYSTER BAY EXPRESSWAY SOUTH (135) TO MERRICK ROAD EAST. GO 6 BLOCKS AND MAKE A RIGHT TURN ONTO SEAMANS NECK ROAD AND FOLLOW SIGNS INTO PARK.
 

Please help us in our fight to raise awareness, help the children and their families and fund much needed research to find treatments and a cure!  Your donation and participation can help!!!
Thank you!
The Miller Family (Melanie)
The Cahill Family (Scott)
The Greco Family (Katie)
The Lazazzaro Family (Samantha & Jake)


Online Sponsors to date: Page 1 of 2     Latest  << | < | > | >>  Earliest  
Display Name Date Amount  Comment
the keilty's 6/27/2008 $25.00  
margery rubin 6/1/2008 $25.00  
Brian Blinderman 5/28/2008 $100.00 In memory of Melanie 
The Zane Family 5/28/2008 $100.00 for Sammy & her brother from Jake Zane's family 
The Flaherty Family 5/26/2008 $50.00 In Honor of Melanie and her family 
Diana Holley 5/26/2008 $50.00 God Bless your little Angels! 
Ralph Defalco 5/26/2008 $100.00 Your in our prays. 
Rob and Tina 5/23/2008 $50.00  
Danny Barnwell 5/23/2008 $100.00  
jakesmomlisa 5/23/2008 $25.00 great job!!!!!!!! 
The Kunzig Family 5/23/2008 $25.00 For Samantha, Jake & their family. We love & support you. Whatever you need, we are here. Good luck! 
Rae 5/22/2008 $50.00 For Jake and Samantha :) 
laura harjus 5/21/2008 $25.00 for sammy and jake we love you at jk 
The Rodriguez Family 5/20/2008 $100.00 Our thoughts are with you 
Noreen Zaman & Ben Mullin 5/19/2008 $20.00  
marla 5/19/2008 $100.00  
dino prodromakis 5/19/2008 $250.00 with love, to samantha and jake 
Carolyn Orena 5/18/2008 $250.00  
Florence Skaf 5/16/2008 $100.00 To Jake and Sammy With Love, Lisa Marrin's aunt 
cousin Lydia 5/16/2008 $38.00  
Aunt Judy and Uncle Butchie 5/16/2008 $100.00 For our sister Maria - the bravest Mom ever - and for our beautiful Samantha and Jake 
Curtis and Cindy Pick 5/16/2008 $25.00 Our hearts are with you . . . 
Pediatric Health Associates 5/16/2008 $100.00 Good Luck on the walk. We miss Samantha and Jake!! 
Mike and Rosemary Leonetti 5/16/2008 $50.00 With love and hope 
lehrhoff family 5/15/2008 $500.00 best of luck with the walk 
Gabby 5/15/2008 $100.00 In honor of Melanie and her inspiring family, the Miller family! 
Jennifer Bloch Sabbah 5/14/2008 $25.00 Good luck 
Joe and Janie Johnson 5/11/2008 $50.00 Fawn Lake Virginia 
Diane Moore 5/11/2008 $25.00 Mal and Tom from room 121 thanks for spreading the awareness. Good Luck! 
Nina Fiorito 5/11/2008 $50.00 For Samantha & Jake from Kara's Mom 
Malarie and Thomas 5/9/2008 $25.00 Good luck Sammy Sue and Jake! We love and miss you! 
Eve Volonakis 5/9/2008 $10.00 Friend of the Frisone's 
Judy and Allan Bart 5/9/2008 $25.00 Maria, we are friends of Judy and Butch and wish you good luck 
eric, debbie, olivia and max baron 5/8/2008 $100.00 Maria- I am an old friend of Valerie's.- Eric Baron 
The Gleason Family from Fawn Lake VA 5/8/2008 $100.00  
The Mastris 5/8/2008 $100.00 For Jake and Sammy from friends of Aunt Valerie 
Hauppauge CPSE 5/8/2008 $50.00 Keeping you in our thoughts 
jessica 5/6/2008 $25.00 Friend of Danielles 
KC Hamill 5/6/2008 $20.00 Glad to help, thanks Alia for letting me know. 
KARA FIORITO 5/6/2008 $25.00 FOR MY B.F. "DANIELLE'S" NIECE & NEPHEW 
Nick Andreottola 5/6/2008 $50.00  
Kevin Kruger 5/5/2008 $100.00 Love to Sammy and Jake from Kevin, Terry, Kevin & Kerry 
Peggy&Tom D'Amico 5/4/2008 $50.00 love &miss you my sammy jo 
Stephanie Smith 5/3/2008 $50.00 Thinking of you Maria and wishing you and your beautiful children love and strength. 
Amy & Bob Fischer 5/2/2008 $100.00 with love, for Sammy & Jake and friends 
Eileen Cristiano 5/2/2008 $25.00 With all my love  
friends of Danielle at Sanibel 5/2/2008 $100.00 for my best friend and niece and nephew.. luv u !! 
Michelle Handley 5/2/2008 $25.00  
Jan Larsson 5/2/2008 $150.00  
Andrea Sahaidachny 5/2/2008 $25.00 For Sam and Jake - who own a piece of my heart today and always 
Achievement Therapies, LLC 5/2/2008 $100.00  
Debi, Rob, Gwyneth and Julia H. 5/2/2008 $25.00 For Sammy and Jake, and Maria. Forever in the hearts of room 121. 
Brian McParland 5/1/2008 $50.00  
Merced Family 5/1/2008 $500.00 To Sam & Jake from Lauren (La La), Maria, Steven and David 
Pickus Family 5/1/2008 $25.00 From another Just Kids Parent (rm 121) 
allison Clarke 4/30/2008 $250.00 we love you sammy jo, jake, maria 
Leslie Hummel 4/30/2008 $25.00 Neighbors of the Ballantine's in Virginia 
Louise Ferrara 4/30/2008 $100.00 Sammy and Jake, Granny will love you forever! 
Tony and Ellen Rillo 4/28/2008 $25.00 My sister is Grace Kunzig. Good Luck.  
Eddie Prodromakis 4/28/2008 $250.00 Jake & Samantha Lazazzaro 
The Floyds 4/28/2008 $150.00 Neighbors of the Ballantines in Virginia 
Mike Florie & Jenee Occhicone 4/28/2008 $200.00  
Brenda Nirenstein 4/27/2008 $50.00 In honor of Maria Lazazzaro – Sam & Jake’s mom  
Lianne Bellinger 4/27/2008 $50.00 Your in our thoughts Maria - and so are your beautiful children. 
JRR 4/27/2008 $100.00 A little something to raise awareness and help find a cure. 
Cathy, Matt, Jack and Sophia Schneider 4/26/2008 $100.00 To Maria and her beautiful children; We are dear friends of Danielle, Christopher and Joey 
Janice, Joe, Will, and Gwen Schulman (mccullagh) 4/26/2008 $100.00 For Maria and her Precious, Gorgeous Children 
maria lazazzaro 4/26/2008 $6.00 Maria & Missy hitting $10,000 TOGETHER!!!!  
Missy Miller 4/26/2008 $6.00 maria & missy hitting $10,000 TOGETHER!!! 
Noelle Dunn 4/26/2008 $50.00 My prayers are with you 
Barbara 4/25/2008 $100.00  
Scott Adler and Candice Ney 4/25/2008 $100.00 For Samantha and Jake 
Catherine, David, Sarah & David 4/25/2008 $25.00 You are in our prayers each day! We Love you, The Kilkenny's 
Pete 4/25/2008 $100.00 Maria: We love you.....Love Aunt Bev and Uncle Johnny 
Connie & John Kowalski 4/25/2008 $100.00 For God's special children Sam and Jake 
Grace Tom Jenna and Christine 4/24/2008 $25.00 For Samantha and Jake with all our love 
Stacie Diaz 4/24/2008 $10.00  
Chris & Lanie Marcus 4/24/2008 $200.00  
Marie DiLullo 4/24/2008 $25.00 I am happy to help find a cure for CS. 
Bill Lambert 4/23/2008 $100.00  
sushep 4/23/2008 $25.00 GOD BLESS  
Harvey Cohen 4/23/2008 $100.00 For Samantha and Jake....with Love 
Belinda McDonald 4/23/2008 $50.00 My prayers are with you and your love ones 
Barbara Lindvall and Family 4/23/2008 $50.00 You are in our hearts and prayers. Good luck! 
Joy & Liam Sargent 4/23/2008 $100.00 In honor of Samantha & Jake. God bless you. 
Joanne Holbert & Garvin Nix 4/22/2008 $200.00 All our love, your friends Jo Anne & Garvin 
Cristina Herrera 4/22/2008 $25.00 Best Wishes! 
Aunt Val, Uncle Tom, Nick, Isa and Halle 4/22/2008 $500.00 With love for my precious niece and nephew 
kastorianos 4/22/2008 $50.00  
Jane LeRoux 4/22/2008 $25.00 In honor of Mikki & Sam's grandchildren 
Debbie and Tim Young 4/21/2008 $25.00 For the adorable Samantha and Jake  
Sabrina Wolkoff 4/21/2008 $100.00 Melanie's beautiful spirit will always live in our hearts and souls. 
Anonymous 4/21/2008 $500.00 We love you Samantha and Jake 
Betty Johnson 4/21/2008 $25.00 For Jake & Sammy 
Brian 4/21/2008 $250.00  
Marisa and Carl Friedrich 4/21/2008 $500.00  
Christine (McHale) Healy 4/21/2008 $25.00 I am friends with Lisa Marrin. This is for Jake and Sammy. 
Brian Haughney 4/21/2008 $50.00  
Dave and Maureen Frisone 4/21/2008 $50.00 For Samantha & Jake with all our love 
Michele, George, Tyler & Julia 4/20/2008 $25.00 We love you! 
  Page 1 of 2     Latest  << | < | > | >>  Earliest  
* Total raised online: $12,935.00
Amount raised offline: $13,618.00
Grand Total: $26,553.00
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