Huntington's Disease Society of America (HDSA) is the only national voluntary health agency that provides support and services to persons with Huntington's Disease (HD) and their families through a national/regional...
Huntington's Disease Society of America (HDSA) is the only national voluntary health agency that provides support and services to persons with Huntington's Disease (HD) and their families through a national/regional structure. HDSA
was founded in 1967 by Marjorie Guthrie when her husband, Woody Guthrie, the legendary American folksinger, lost his long and painful battle with HD.
HDSA is committed to funding research that will lead to improved treatments and, ultimately, a cure. HDSA supports 17 major HD laboratories in North America and Europe through the HDSA Coalition for the Cure and provides
23 grants and fellowships to young investigators just starting out in the field
of HD research.
HDSA also leads in providing care for HD patients and their families at our
21 Centers of Excellence. HDSA's 12 regions and 37 chapters and affiliates
and 150+ support groups help educate the general public and healthcare professionals. This dedicated circle of people provides networking and information and creates fundraising opportunities through a wide range
of exciting and worthwhile events nationwide.
