8/9/09-I also wanted to let some very special people know that when we Stroll this year the kids and families that we met at Childrens will be in our hearts and prayers.  It's always a learning experience when we stay in the Epilepsy unit.  Dylan & I met Jayden while we were there and he touched our hearts.  We hope that he is doing well and wanted him to know that he'll be there Thursday night, with us, in our hearts!

8/9/09-Thursday is fast approaching and I haven't updated Dylan's page for quite awhile!  Here's the good news to update you about Dylan's last visit to Childrens...NO BREAK THROUGH SEIZURES!!  YES!!  The doctors have decided to try a different seizure medication so over the course of the next three months we'll be slowly taking one away while adding another, along with that he was taken off of two other medications and he's thrilled!  He takes his meds twice a day on a regular schedule without much complaint but that little blue pill that made him sleepy always drove him mad!  Well that one is gone!  He's happy...mom's kind of warn out though because my little firecracker never seems to wear out now...sigh...but that's okay...he does seem to be responding well to the new meds and hopefully they'll be able to regulate them so he won't struggle so much academically.  It's a waiting game.  No matter the meds or the doctor appointments anyone that knows Dylan knows that he's always happy and full of energy.  Always willing to help in any way he can (even if you don't want it!)

He's such an inspiration!  His strenght and willingness to share his story makes me even prouder of him!  Even on the toughest days he can give me a squeeze that makes me feel so important, and his smile ALWAYS makes me smile!

We hope that you all remember throughout the year the tough road ahead for someone with Epilepsy.  It's sometimes the mystery diagnosis that never has an answer (like Dylans) but it's there and the reality of wondering when the next seizure may come is ever on your mind and in your heart.  If you can make it to the Stroll on August 13th at Lake George, please join us!  You will meet many amazing and beautiful people and you will learn about a disorder that is a part of more than a million peoples lives just in Minnesota alone.  EVERYONE is welcome to Stroll and anyone that wants to be on Dylan's Dream Team just needs to say the word, you are all welcome!

Thanks to everyone for always supporting Dylan and his annual Stroll efforts.  Your thoughtfulness will always be remembered and we'll always try to Pay It Forward!  LOVE & HUGS EVERYONE!

7/20/09-Well we're back at Childrens Hospital for more tests.  Dylan will be here for 3 days for a video EEG.  He's doing fantastic!  Playing Trouble (not getting into it this time:)  Wanted to let everyone know that Dylan will be selling Jimmy's Pizza again this year at Hometown Pride this weekend, Friday & Saturday.  Please stop by his booth to say hello and enjoy a yummy slice of pizza!  We had a great time last year and are looking forward to another great weekend!  It was fun seeing you all at the parade in Richmond!  We love wearing those pizza hats!  Stroll coming up August 13th, hoping to see you all there!  Dylan is loving all of the support he's getting and he can't wait to see you all and thank you!  We'll try to update after we learn more about what they find on his EEG.  Thank you for visiting his fundraising page!  Have an outstanding night:)

6/1/2009-Over the weekend we held Dylan's first annual garage sale fundraiser and he raised $500!!  He's halfway there, although we may have to raise his target amount because our team is already 20+!  It's so amazing how many people are supporting him.  Perfect strangers stopped by just to wish him well and to meet him.  He's so lucky!  He was so happy with his sale that he's busy already getting ready to throw another one in July during Cold Spring's city wide garage sale day!  He's working like mad to make some more gift items as they were a huge hit at the sale!  I'll keep you all posted on his progress:)

2/25/09-This is really not my fundraising page.  It's Dylan's!  I'm just here to support him and his dreams!  So...three years we've been a part of this stroll!  We are so looking forward to another successful year.  What a great feeling raising money for something so near and dear to our hearts!  I will update Dylan's page with all new information soon!  Thank you so much for stopping by!  We look forward to seeing you all at the Stroll!