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CDH Awareness via Faith Grace Miles
Page Creator: Amy Miles
Page Closes: Jul 28th 2009
Fundraising Page Image
Faith at 33 weeks
About my nonprofit:
CHERUBS THE ASSOC OF CONGENITAL DIAPHRAGMATIC HERNIA RESEARCH
CDH is a devastating birth defect, affecting 1 in every 2500 babies. It occurs when the diaphragm fails to fully form, allowing the abdominal organs to enter the chest cavity and prevent lung growth. CDH...
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Fundraising target: $2,000
Total raised so far: $2,135.00
Fundraising progress
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My personal message:

Thank you for visiting my fundraising page!

My name is Faith Grace Miles!  I am a CHERUB!  I was born on March 6, 2008.  My parents found out that I had a diaphragmatic hernia (CDH) when I was 20 weeks in utero. Within a week my Aunt Jen had told them about this site CHERUBS that was a support group for families of children with CDH.  My parents researched CDH, joined the support group, and found an amazing set of doctors at the University of Michigan Motts Children's Hospital that will take care of me!  At U of M I was involved in a clinical research trial that used perfluberon to help my lungs expand. I hope that they will learn how to help other CDH babies with this study. I was on ECMO for 18 days and had my repair at day 15 of life. My organs couldn't fit inside my body so I had a silo. After I got off of ECMO I had severe pulmonary hypertension, a blood clot, and problems with fluid leaking from my silo. I fought so hard and the doctors tried everything they could, but in the end it was my time to visit heaven.  My mom, dad, grandpa Grace, and grandma Miles were able to hold me before I left this worldly planet.  I left with a smile on my face and peace in my heart.

So many people have helped my mom and dad through these scary times.   Prayers and support for me have amazed my parents!  The communities have really reached out to help them. Now they want to give back and need your help.  CHERUBS has been a great source of knowledge and a place of healing for my parents.  They have talked to people from all over the United States and even in other countries to learn more about my congenital defect.  All CDH parents agree that increasing awareness and funding for research is a top priority. 

Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.

Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!

Thank you for reading my story!  You can find more updates about me on www.carepages.com  register your email address and search for FaithGraceCDH.  Once you register, it will send you updates everytime we update the webpage.  This will be your most up to date information as we travel down this road.  

Love,

Faith Grace Miles


Online Donors to date:
Display Name Date Amount  Comment
Joyce Rhodes 7/1/2008 $50.00 The joy Faith brought will never be forgotten. God Bless you both. 
Joe "Swede" Ortquist 6/17/2008 $50.00 Littlest Faith, eternal peace be yours. God bless. 
Kurt, Doug, Ramez, Nate, Tanner & families 6/8/2008 $80.00 In loving memory of beautiful Faith...you touched our lives and our hearts 
Danielle Golding 6/1/2008 $25.00 In loving memory of Faith Grace Miles. You touched so many! 
Matthew Grace 5/30/2008 $25.00 In Loving Memory Of An Amazing Little Girl 
Angela Hessler 5/30/2008 $50.00 In memory of Faith Grace  
Amy 'Reid' Starnes 5/1/2008 $25.00 I am Jeff Reid's sister and we are so sorry for your loss! My God keep and comfort you through...  
Robin Mower 4/23/2008 $50.00  
SaPrice 4/21/2008 $25.00 May the memory of Faith continue to help others. She was an angel from God and touched so many lives 
Allison Mitchell 4/18/2008 $25.00 May the research continue so that one day babies can have freedom from CDH 
Kyle and Laura (Lessin) Edwards 4/14/2008 $30.00 Our thoughts and prayers are with you Steve and Amy 
Amy Miles 4/14/2008 $200.00 Our love for you Sweet Pea will never end. Sending butterfly kisses to you from Mom and Dad.  
Barbara Lindley 4/13/2008 $50.00 In memory of our beautiful angel, Faith Grace 
Scott and Jeimi Diedrich 4/13/2008 $25.00 Some day we will hug Faith when we meet with her in heaven, she is our little angel 
Brandon, Kathy, Jacob & Elizabeth 4/13/2008 $200.00 For our sweet little Faith who we will forever remember. 
Meghan & Jason Hathaway 4/12/2008 $50.00 In loving memory of your beautiful angel who will forever be in our hearts. 
Mary and Glenn 4/12/2008 $100.00 In memory of our little angel Faith, who we love so much and will never be forgotten! 
The Vavala Family 4/12/2008 $50.00 In memory of Faith Grace  
sherry & jason robinson 4/10/2008 $50.00 Our thoughts and prayers are with you.  
jennifer and taylor 4/10/2008 $50.00 Faith, we love and miss you. We loved every minute we got to spend with you.  
Robert and Carolina Grace 4/10/2008 $50.00 We love you Faith. 
Diane and Richard Fleming 4/9/2008 $50.00 May God comfort you 
Sidney and Mary Graham 4/9/2008 $75.00 We are so very sorry for your loss. 
Jim and Pat Hathaway 4/9/2008 $100.00 Steve and Amy, We will keep you in our prayers. Love, The Hathaways 
Sean & Katie Carey 4/9/2008 $50.00 In loving memory of Faith 
Friends at Michigan Spine & Pain 4/8/2008 $110.00 The many lives you have touched-in a short time-will be changed forever by your presence on earth! 
The Shaf Family - Friends of the Feazells in NC 4/8/2008 $25.00 Our thoughts and prayers are with you. 
Stephanie Olivarez 4/7/2008 $100.00 Little Angel Faith--you will be truly missed! May God Bless your Mommy and Daddy. 
Brent & Kristy Taylor 4/5/2008 $100.00 We hope this can help many other babies just as precious as Faith. 
Dan Grace 2/26/2008 $100.00 Love to our Granddaughter to be! 
Norman White 2/26/2008 $25.00  
Mary Knapp 2/26/2008 $20.00  
Patty Machuta 2/25/2008 $25.00  
Shelly 2/24/2008 $25.00 I know that Faith has plenty of clothes and things so I thought this would be a better gift!  
Federico Cabral JR. 2/20/2008 $20.00  
Eva Cabral 2/20/2008 $25.00  
Robert Grace 2/17/2008 $25.00  
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* Total raised online: $2,135.00
Amount raised offline: $0.00
Grand Total: $2,135.00
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