To my friends and family,
On October 28th, I'll be running the Marine Corps Marathon in order to raise funds for the National Marfan Foundation. It is hard to believe it has been a full ten years since I last ran a marathon, and so many of you have inspired me in many ways over the years to push me towards this race. If you'd like to support my effort in fundraising please use the donate button on this page to make a secure donation.
Thank you for your generosity and God Bless.
"Either you decide to stay in the shallow end of the pool or you go out in the ocean." - Christopher Reeve
“If there is no wind. . . row” - Anonymous
What is Marfan Syndrome?
Marfan Syndrome is a genetic disorder, which may affect; the heart and blood vessels (Cardiovascular System), Spine, Chest, and joints (Skeletal System) and the Eyes and their supporting tissue (Ocular System).
The heart abnormalities associated with this condition are however the most life-threatening and the most important to detect. The major heart abnormality is weakening of the root of the aorta which leads to dilation of that root and, at extremes, aneurysm formation and rupture.
THE NATIONAL MARFAN FOUNDATION
The National Marfan Foundation (NMF) is the primary source of accurate and up-to-date information on Marfan syndrome and related disorders. It was founded in 1981 by a handful of individuals seeking help to understand the complex condition affecting themselves and their loved ones.
The Foundation has grown and significantly increased its education, support and research programs. Professional staff oversee the Information Resource Center, which provides personalized service through a toll-free information line (800-8-MARFAN) and the NMF website, medical professional and patient education and public awareness programs, advocacy, and the research grant and fellowship grant programs.