Thank you for visiting our fundraising page!  There are now two children living with Cockayne Syndrome in North Carolina.  Abby Smith and Caleb Paynter are joining forces this Oct. 2011 to raise funds for Share and Care!

Abby was diagnosed over 3 years ago following numerous painful blood draws and hospitalizations due to failure to thrive.  Caleb was recently diagnosed as an infant.  Both have had cataracts removed and feeding tubes placed to aid with nutrition.  Caleb has special contacts to help him see and Abby just had surgery for corneal implants.  These complications are just a few that CS children deal with on a daily basis.  Microcephaly, tremors, contractures, elevated liver enzymes, global developmental delays, sunlight sensitivity, and vision and hearing loss are all part of this degenerative syndrome.  Please help us raise money for Share and Care, the National Organization that supports children and families with CS.  Share and Care funds are directly tied to research regarding improving and extending the lives of CS children.  Boston Children's Hospital and NIH have ongoing studies regarding DNA repair and drug trials with mice to explore the aging process for CS children.  Please join us in honoring these precious children, both here and in heaven, as we walk together on Sat., Oct. 1st!

Donating through this website is simple, fast and totally secure. It is also the most efficient way to support ourfundraising efforts.

Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate  and/or walk with us!

Sincerely,

The Smith and Paynter Families