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Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.
 

The 2nd Annual Butterfly Walk will be held at 5834 Bur Mill Club Rd., Shelter # 5, Greensboro, NC  27410.  Registration begins at 8:30 a.m. with the walk beginning at 9:30 a.m.  Register before the event online by clicking, "Join our Team" and get a free t-shirt!!

Cockayne Syndrome (CS) is a rare genetic disorder characterized by poor growth, microcephaly, progeria (premature aging), sensitivity to sunlight, moderate to profound developmental and neurological delays, and a shortened lifespan.

 Funds received from the 2009 National Butterfly Walk enables The Cockayne Syndrome Network to continue its mission to provide educational programs, exchange of information, and also support research.   The Share & Care Cockayne Syndrome Network and our Medical Advisory Board members are proud to announce we have coordinated the first scientific conference focused only on Cockayne Syndrome, which is going to be held September 2009.  We will have close to 40 leading researchers in the field of CS from around the world gathering in Boston, Massachusetts to share information that will assist researchers and increase interest in helping CS patients.

Visit www.cockaynesyndrome.org to find out more about this devastating disorder.

Please share this page with others.  Many thanks for your support.

Sincerely,

The Smiths