This has effected our family, as it is a genetic disease it has come close to home. it's time we get involved in this fight to find a cure. To stop this from continuing in further generations. please help us in this fight. THANK YOU WITH MUCH LOVE jOCELYN.   Thank you for visiting my Personal Fundraising Page. Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to our fundraising efforts. Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!