Hello,

Kelli Kay and the entire Kelli Kayper team would like to thank you for visiting our fundraiser page. :)

We  have been blessed with a great family and wonderful friends.  I am the mother of two beautiful daughters, one of whom has Rett syndrome (RTT).  Never heard of Rett syndrome?  Neither had we until our first  daughter, Kelli Kay, was diagnosed with it in 1992, at the age of 3.     

For her first  six months, she developed just like every other little girl.   Around 13 months of age, instead of gaining new skills our little Kelli began to regress.  Worse still, we didn’t know what was wrong or what to do to help her.  It took two years of testing, heartache, perseverance, many tears, more testing, and countless doctors to finally find a diagnosis for our now “silent angel.”

We have  spent two decades learning to accept that our daughter has Rett syndrome and that means we must do all we can to help her stay as well as possible.   So, why are we actively helping to raise money for Rett syndrome research now?

Because there is reason to hope!   Researchers have taught us to hope again.  They’ve reversed the symptoms of Rett syndrome in mice.  And before the end of this year, the second phase of a drug trial at Boston Children’s Hospital and a second clinical trial in Texas, will both begin!  Now is the time to do all we can to keep this research moving forward.

Kelli has struggled with the symptoms of Rett syndrome for over two decades.  If we can make even one of her challenges easier through this research, such as having fewer seizures . . . well, all  I can say is your support may change lives. It may indeed even change Kelli’s in her lifetime. 

Thank you so much for any donation you are able to make, no matter how big or how small.  It will be greatly appreciated.

Thank you for visiting our fundraising page!

Donating through this website is simple, fast and totally secure. It is also the most efficient way to support our fundraising efforts.

Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!