HI! My name is Christine. You might know me from being my family, my friend, we may have worked together, or maybe you know me from ButYouDontLookSick.com
I have had Lupus for over 17 years....yes more then half my life. I don't remember what living without medicine, pain, doctors, or limitations is like. I have always had to work twice as hard to get even half the results.
This past year I was hit hard with Lupus and got so sick that I was in and out of hospitals 3 times, and lost feeling in my legs. I was in a wheelchair. I could not walk. It was very scary. After trying every other option (I have now been on every lupus drug) They were forced to start Cytoxin (chemotherapy) treatments. Once a month, I still do recieve these treatments. I am so thankful that with a lot of hard work, and dealing with some nasty side effects from poisin medicine I am doing much better.
I crawled, I used a wheelchair. I hobbled, I used crutches. I had to much pride, I tried to use a cane... I fell. I went to physical therapy, I got stronger, I cried. The medicine started to work... I walked, I jumped, I danced... and then yes, The Big Question "what are you gonna do now?" I went with my family to Disney. By no means am I in remission. I am just very good, compared to very bad. I have bad days, and even bad weeks. I am still doing my chemo treatments. I get very tired. I LOVE my husband, my daughter, our family and I die just a little each time I can't do what want, and can't take care of them the way I know I could.
That is if you can belive it is the good side of the story. The bad side is that there has not been a new drug approved for Lupus in over 50 years. THIS YEAR could be different a new Drug called Benlysta should be for use this coming year. It looks very promising. There are other new drugs in trial phases. Now is the time to donate, when so much is on the brink of happening for lupus! You can help!
This is our 16th year walking! Last year "TEAM CHRISTINE" raised a little over $11,000!!!
We try to beat the previous year every year. We will walk every year until there is a cure. This has become a very special family tradition. We celebrate my Life with Lupus, despite it. We gather family and friends, and sorority sisters, babies in strollers... the whole gang to support, laugh, love and show lupus that it can not beat us. If you can join our team and walk with us that day- that is great. If you can donate... even better! If you would like to "virtually walk" with TEAM CHRISTINE, make a fundraising page, and join our team! Every donation counts. Thank you for visiting my fundraising web page for the 17th Annual Walk-Along for Lupus!
The Lupus Alliance of America LIQ`s Affiliate`s, Walk-Along for lupus is the first and longest running, Lupus walk On Long Island, and the only Lupus Walk on Long Island that raises funds both for research as well as to help support the individual living with lupus by providing financial, supportive, and educational programs.
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts. To learn more about Lupus, the Lupus Alliance and the Walk-Along for lupus you can visit www.lupusliqueens.org.
Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too! You can also tweet my page on Twitter, share it on Facebook, post it as a bulletin on myspace, or post it on Digg.com. Even if you can’t donate, please take a moment to pass this page on to everyone you know and help us spread the word about lupus, what it is, what it is like to live with it, and how we all can help!
The monies collected at the Walk-Along for Lupus go directly towards funding the Lupus Alliance of America LIQ`s Affiliates support groups, telephone counseling service, financial assistance program, kids program, educational seminars, and more, as well as to novel research into the cause and cure for lupus.
The Lupus Alliance of America LIQ Affiliate`s Board Members and small staff, who have been working hard for those living with lupus for over 55 years, all have a personal connection to lupus. Whether they have lupus themselves, or love someone who does, their dedication to the cause is not just professional, it’s personal. Our fight is their fight! Our struggle is their struggle! So please, help us and join the fight, by donating to my page today!! Thank you!