Thank you for visiting my fundraising page!
My name is Norah Rosemary and I was born September 19, 2008. I cannot talk, use my hands very well, or play with toys, but I am one happy girl! I love to giggle and smile and spend time with my little brother Simon. I enjoy the outdoors, watching “Babe” and “The Fresh Beat Band”, swinging, throwing tennis balls, splashing in water, swimming, jumping on my trampoline, playing fetch with my dog, Violet, and chasing my chickens around the yard. I developed normally early in life, but I was a late walker - walking at 22 months. I used to love to page through books, that was my favorite thing to do - but in December of 2010, I lost that ability. I used to have the ability to say some words: “good dog, dad, bird, bear, hi,” to name a few, but I lost all of my words by the time I turned two and a half. I also used to be able to blow kisses and wave good bye, but now, I cannot. After months and months of therapy, and not improving, my mom and dad took me to some specialists and on April 5th, 2011, I was given the diagnosis of Rett Syndrome.
My mom tells me that I am her angel and I inspire her and my dad everyday. She says I make everyday a little easier, and a whole lot more fun, and they are so blessed to have me in their lives.
I CAN HEAR YOU! I UNDERSTAND YOU! I AM SMART! I just have a hard time expressing myself.
"There is a cure for Rett syndrome. We are nearly there. And we will get to it, if we have the funding. In my own research, I am carrying out a project that is very cutting-edge. Funding from IRSF accelerates research at a pace that cannot be matched by the government.”
— Dr. Huda Zoghbi
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.
To learn more about Rett Syndrome please visit rettsyndrome.org!
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