I am the Chapter President for the Huntington’s Disease Society of America, North Carolina Chapter. We are a national, voluntary health organization dedicated to improving the lives of people with Huntington's Disease and their families by promoting and supporting research and medical efforts to eradicate Huntington's Disease. Our mission is to assist people and families affected by Huntington's Disease, helping them cope with the problems presented by the disease, and educating the public and health professionals about Huntington's disease.
Huntington's Disease is a devastating, hereditary, degenerative brain disorder for which there is, at present, no cure and only one FDA-approved treatment (Xenazine) for one symptom of HD. HD slowly diminishes the affected individual's ability to walk, talk and reason. Eventually, the person with HD becomes totally dependent upon others for his or her care. Huntington's Disease profoundly affects the lives of entire families -- emotionally, socially and economically.
I, at the age of 35, tested positive for the disease. Now, three years later, I am symptomatic and the fact that we still have no cure and no definitive treatment make me sad. I have two sons who at are risk for Huntington’s, one in elementary school the other in high school. I am helping to host this year’s Team Hope Walk for Huntington's Disease Society of America on Saturday ,October 26, 2013.
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HDSA, North Carolina Chapter
Email: TERRELL.ADRIANE @gmail.com