Team Lionheart continues the fight to find a cure for Tuberous Sclerosis!!!
Our son Richard was born with a currently incurable disease called Tuberous Sclerosis. He fights every day to learn and be part of this world. When he works so hard, we could hardly do less. So we are trying to help in any way we can to fund research into therapies and ultimately a cure for Tuberous Sclerosis.
The money that we raise goes to the national Tuberous Sclerosis Alliance and funds research, support groups, and financial assistance for hard-hit families coping with TSC. The money that goes to the TS Alliance not only helps improve the quality of life for kids and adults affected by TSC, but it gets us that much closer to finding a cure.
In May 2010, Dr. Ess, Richard's neurologist, took skin samples from Richard. One sample was healthy cells, one was cells affected by TSC. He is using those cells to research gene therapies and potential future ways to replace diseased cells with healthy ones, particularly in the brain. Our dream is for this disease to have a cure in Richard's life time, preferably sooner rather than later so he can benefit too!
We need your help again this year. Our goal is big and so are our hopes.
Please give what you can. And as always we would LOVE to have any of you come to join us on our walk at Centennial Park on October 16th.
Saturday, October 16th at Centennial Park picnic shelter, registration opens at 12:00 and the 2-mile walk starts at 1:00 pm.
Thanks to you all,
Richard, Maddie, Sandy and Rick