Greetings,
If you are viewing this page you have somehow been introduced to our world of Ashley and Angelman Syndrome. If you have ever met our Ashley she has surely captured your heart or hair in some way (((smile))).
Angelman Syndrome is a rare genetic disorder that causes neurological problems and severe developmental delays. The occurrence of this disorder is believed to be an estimate of between 1 in 15,000 to 1 in 20,000 births. This year Angelman Syndrome awareness increased dramatically when a major celebrity announced that his son has Angelman Syndrome.
This is one of the reasons we would like to help spread the word to everyone especially for those special cases where there may be misdiagnosed or undiagnosed "angels among us", that could be getting the correct medical care that they need and deserve.
Angelman affects the everyday activities of people diagnosed and they will require constant care for the rest of their lives. Ashley is a happy and outgoing child who leaves a lasting impression on everyone she meets with her big grin and energetic personality.
We would like to thank all of our family and friends who have helped us through the difficult and good times since 2004 when we originally received her diagnosis. While it may not have always been easy, it helps to have the continuous support of family and friends like you.
In 2006 we hosted Birmingham's first Walk (the foundation's 8th) and can you believe we are now getting ready for our 3rd Annual Birmingham Walk-A-Thon on May 17, 2008 at UAB's Mini Park. We had a great time last year with clowns, fire trucks, and fun filled activities, and we look forward to seeing all of our friends again on May 17, 2008.
Thank you for visiting my Personal Fundraising Page. Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to our fundraising efforts. Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!