Dear Friends and Family,
Thank you for visiting my fundraising page! Many of you have joined Allie's Angels for the strollathon in The Woodlands for the past few years. Now we will be able to Stroll for Rett in the DFW area. North Texas will host their first annual strollathon on Sunday, October 21 from 1:00-4:00p.m. at Parr Park, 3010 Parr Lane Regional Park, Grapevine, Texas 76051. http://local.yahoo.com/info-24457700-parr-park-grapevine Please join us to walk for Allie and become one of Allie's Angels.
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.
Why is it is so important to donate ?
Rett Syndrome is a developmental disorder caused by a spontaneous mutation and can occur in any family. Rett is the most physically disabling of the autism spectrum disorders. Primarily affecting girls, Rett Syndrome often strikes just after they have learned to walk and speak a few words, and then begins to reverse their development. Symptoms such as loss of speech, loss of motor control and functional hand use, sleep disturbances, autistic behaviors and sensory issues, impaired cardiac, circulatory and digestive functions, Parkinsonian tremors, seizures, anxiety, apraxia, dystonia, and orthopedic problems including scoliosis and osteopenia.
Mutations in a gene called MECP2 cause Rett Syndrome and have also been found in individuals diagnosed with autism, learning disabilities, anxiety disorders, childhood onset schizophrenia, and other neurophyschiatric disorders. Rett Syndrome research will have far reaching implications for a myriad of disorders.
Research funded by IRSF has proven that Rett syndrome can be reversible. The first disease modifying clinical trial started last October and the IRSF board and staff have dedicated themselves to raising $3 Million more in funding for cutting-edge translational research that will help develop the drugs these girls and women need to relieve some of their suffering. The future of children and adults with Rett Syndrome depends on research.
Thank you for your support -- and don't forget to forward this to anyone who you think might want to donate too!