Dear Friends,
As you know, our daughter Emma (8 yrs old) suffers from a devastating neurological disease called Rett Syndrome. Over the years we have turned to you for help in raising funds for research and once again I am asking for your support. 2012 is set to be a possible breakthrough year for Rett Syndrome Research.
(Read more from Monica Coenraads--Executive Director Rett Syndrome Research Trust
-http://www.rsrt.org/rttwatch/2012/Executive-Director-Letter.html)
Next month I am running in my first ever half marathon at Walt Disney World's Disney Princess 1/2 Marathon on an official Disney Charity Team, called Girl Power 2 Cure, raising funds for Rett Syndrome research. This team was created and is run by one of our Rett moms and is composed of over 70 runners running for Rett Syndrome. In support of this endeavor, I am once again asking for your support.
Science right now is exciting, the research is moving fast and offers real hope for our girls. But unfortunately it is almost all privately funded and so it is up to us, the parents and friends of Rett Syndrome, to support and further the research.
Any donation is welcome. There is no amount to small!
Our website is www.emmafoley.com to read more.
Or you can mail checks (please put Emma Foley in memo) to:
Girl Power 2 Cure, Inc.
2891 Breakers Court
Amelia Island, FL 32034
Or of course send to me as well.
Thank you in advance for your support!
Allison, Kevin, Emma and Abigail
More about Emma and Rett Syndrome
Emma Foley is a delightful 8 year old girl diagnosed with Rett Syndrome about 6 years ago. She developed normally until about 15 months when she stopped reaching her milestones. She then lost skills she once had. As a parent, watching your child regress and lose skills is a devastating experience, especially at at time when she should be exploring her environment and learning independence. The devastation of Rett Syndrome makes her completely dependent for EVERYTHING she does. Yet despite her challenges and the monster we call Rett Syndrome, she exemplifies more courage and determination than anyone we know.
To see the damage of Rett Syndrome reversed will require an army of informed
and committed supporters. Join us!
Imagine the symptoms of autism, cerebral palsy, Parkinson's, epilepsy, and anxiety disorders....all in one little girl.
Now imagine these symptoms vanishing...one by one.
This is the work of the Rett Syndrome Research Trust.
We welcome your commitment and support.
What is Rett Syndrome?
Rett Syndrome is the most physically disabling of the autism spectrum disorders. Primarily affecting little girls, Rett often strikes just after they have learned to walk and say a few words, and begins to drag their development backward. This debiliating syndrome includes symptoms seen in many other severe neurological disorders on which Rett research may shed light. Currently there are no effective treatments for Rett. Most girls survive into adulthood and require total, 24-hour-a-day-care