Emma Foley is a delightful 8 year old girl diagnosed with Rett Syndrome about 6 years ago.  She developed normally until about 15 months when she stopped reaching her milestones. She then lost skills she once had.  As a parent, watching your child regress and lose skills is a devastating experience, especially at at time when she should be exploring her environment and learning independence.  The devastation of Rett Syndrome makes her completely dependent for EVERYTHING she does. Yet despite her challenges and the monster we call Rett Syndrome, she exemplifies more courage and determination than anyone we know.

To see the damage of Rett Syndrome reversed not in mice, but in humans, will require an army of informed
and committed supporters. Join us!

Imagine the symptoms of autism, cerebral palsy, Parkinson's, epilepsy, and anxiety disorders....all in one little girl.

Now imagine these symptoms vanishing...one by one.

This is the work of the Rett Syndrome Research Trust.

We welcome  your commitment and support.

What is Rett Syndrome?

Rett Syndrome is the most physically disabling of the autism spectrum disorders. Primarily affecting little girls, Rett often strikes just after they have learned to walk and say a few words, and begins to drag their development backward. This debiliating syndrome includes symptoms seen in many other severe neurological disorders on which Rett research may shed light. Currently there are no effective treatments for Rett. Most girls survive into adulthood and require total, 24-hour-a-day-care