Amy Celento's Fundraising Page
Thank you for visiting our CAF fundraising page!
We are using this page to help raise money for the Cooley's Anemia Foundation (CAF), a non-profit organization that battles the fatal blood disease thalassemia (a.k.a. Cooley's anemia), which James has.
CAF is the nation's leading advocate for people with thalassemia, who must endure lifelong blood transfusions. James gets 2 units of blood every four weeks.
Patients battle a wide range of complications, including heart and liver failure, diabetes and hepatitis and many are still dying before they reach 1/2 of what is considered to be a normal life span.
CAF provides valuable patient service programs, funds important medical research and educates the public, the medical community and elected officials about thalassemia. James is seen here at the Thalassemia Action Group (TAG) Conference in May. He learned more about thalassemia and got to spend a day with other kids who have the disorder.
CAF has also recently launched an innovative new CURE campaign, which will advance gene therapy for thalassemia and for thousands of other single-gene disorders. Gene therapy WILL bring a cure to James!
Your willingness to help can enable CAF to make a huge difference in the fight against thalassemia and James' future. Donating through this site is simple, fast and totally secure.
Many thanks for your support!
Love,
Amy and James