The "Double One" Campaign: In honor of James 11th birthday, we are using this page to help raise money for the Cooley's Anemia Foundation (CAF), a non-profit organization that battles the fatal blood disease thalassemia (a.k.a. Cooley's anemia), which James has.
We welcome donations of any size with a target of at least $11 per person ~ Double One!
CAF is the nation's leading advocate for people with thalassemia, who must endure lifelong blood transfusions. James gets 2 units of blood every four weeks.
To see and hear more about James' treatment, check out this video. http://www.youtube.com/watch?v=Lx1f9tuFedQ&feature=channel_page
Patients battle a wide range of complications, including heart and liver failure, diabetes and hepatitis and many are still dying before they reach 1/2 of what is considered to be a normal life span.
CAF provides valuable patient service programs including the Thalassemia Action Group (TAG) which holds an annual patient conference, funds important medical research and educates the public, the medical community and elected officials about thalassemia.
CAF has also recently launched an innovative new CURE campaign, which will advance gene therapy for thalassemia and for thousands of other single-gene disorders. Gene therapy WILL bring a cure to James!
Amy and Keith have kicked off the campaign with an off-line donation of $1,100. Please join in the campaign and add your personal donation. Your willingness to help can enable CAF to make a huge difference in the fight against thalassemia and James' future.
Donating through this site is simple, fast and totally secure. If you prefer, send your donation directly to CAF www.cooleysanemia.org and note "Double One" on your check.
THANK YOU FOR YOUR SUPPORT!
Love,
Amy and James