Thank you for visiting my fundraising page!
"Going the Extra Mile" can mean many things, but it has very literal implications for someone with Prader-Willi Syndrome. Can you imagine having to add an extra one-third onto anything you do, just to burn as many calories as everyone else around you? That is life for someone with PWS, as their metabolism is approximately 60% of a typical person's- and the inspiration for race coordinator Rachel Johnson, who came up with the tagline for this run.
I'm excited about running in an event focused specifically on PWS, as part of a larger event combating obesity. Even better, any proceeds from this event will go to the Foundation for Prader-Willi Research. Ongoing research could hold the key to an even brighter future for Noelle and others living with this syndrome!
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.
Many thanks for your support -- don't forget to forward this to anyone who you think might want to donate too! And if you would like to take part in this event yourself (there is a walk, a 5K run, a 1/4 mile fun run for kids, and lots of excitement), go to http://sites.google.com/site/extramile4pws/
To learn more about Prader-Willi Syndrome, please visit the Prader-Willi Alliance of New York, Inc at www.prader-willi.org or the Foundation for Prader-Willi Research at http://fpwr.org.