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International Rett Syndrome Foundation

Run for Leah Bean - Hope for a Cure

Donations as of June 20, 2013:

$0.00 Raised Offline
$968.73 Raised Online
$968.73 Total Raised

Run for Leah Bean - Hope for a Cure

Thank you for stopping by! In doing so, you have the opportunity to help provide hope in the lives of others.

Let me tell you a little bit about who and what I will be running for in NYC on November 4, 2012:

When I was accepted to run the 2012 NYC Marathon, I knew that I wanted to run for little Leah. I met her mom, Maren, over 6 years ago, before leah was even a part of their family.  Leah was born in February 2007, and she was perfect in every way. A little over two years later, after many sleepless nights and painful testing, Leah was diagnosed with Rett Syndrome, a rare but severe neurological disorder that affects everything she does

After developing normally for the first year or more of her life, she went through a period of regression. During this time, she slowly lost the abilities she once had: control over her arms and hands, talking, feeding herself, playing with toys, climbing, and more. As you can imagine, this was heartbreaking for her loving parents, to see these things taken away from their beautiful Leah. 

As I've read about Leah's experience, my heart has been touched more than once. What she is experiencing, what her parents are experiencing, is a marathon in itself.

In an effort to help support the International Rett Syndrome Foundation as well as little Leah, 100% of funds raised here will go to IRSF in her behalf. The IRSF has been an enormous support for Leah and her family and helps fund those who are making incredible strides with research in hopes to cure Rett Syndrome.

And you have the opportunity to be a part of the search for a cure!

Leah's Mother said, "We have hope that one day there will be a cure and we will see our amazing little leah communicate and enjoy life as we know she wishes she could. For now, we will do all we can to lighten her load and help advance the research in this field."

Thank you for your support!

To read more about Leah, click here

To learn more about Rett Syndrome, click here

Supporters

Comment Donation
The Sawle Family God Bless You!
Uncle Guy & Aunt Sharon
Joseph & Nadine Drysdale
Lisa Mann
Anonymous Go Amy! Way to support a great cause! We love you!
Courtney
Kathy K.
Diane L.
Mary and Lynn B.
Paula S.
Paula Matiak
Great Grandma Stark I certainly pray for a cure soon!
Lucy Heroe Heimburger Leah, Lucy is on your team, too--and hopes for the same miracles. Run, Amy, run!
T Love you guys!
Daddy, Mommy and Kate Love you sweet Leah! More than words can express!
Anonymous Love that Leah more than words can say.
Anonymous I love little Leah and her amazing parents!
Anonymous
Anonymous A small contribution for HOPE

Donation Summary

Raised Offline
$0
Raised Online
$969
Total Raised
$969
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