Once again, we ask for your support as we participate in the 6^th Friends Ride for Neurofibromatosis on September 11, 2010.  We have been riding along Cape Cod, MA (from Woods Hole to Provincetown) to raise funds for Neurofibromatosis (NF) research for several years now. This year Andrés will ride with his dad and Lindsay’s dad, among others. Lindsay and her mom, and Andrés’s stepmom will also be “on-duty” to support the riders. We appreciate everyone’s support – both those who can be there physically and those who are there in-spirit! Though we’ve been riding for many years, we can’t stop until we reach our goal of finding a cure.

As you probably already know, supporting NF research to find a cure is important to us! Andrés has now been cancer-free for a year.  Despite this, we well remember the multiple surgeries, chemotherapy, radiation treatments, and long doctor’s visits that Andrés experienced to fight his MPNST (an aggressive cancer of which 50% of cases are diagnosed in NF patients); now, he’s a three-time survivor! Unfortunately, we have also experienced the loss of two friends over the past two years due to MPNST. There is a lot of work to be done!

This personal experience is one part of why we ride each year. We also ride to help support research that explores better treatment options and a cure for Neurofibromatosis. You may know that Neurofibromatosis is a genetic disorder that can cause uncontrolled tumor growth anywhere in or on a person’s body at any time. NF affects both sexes and all races and ethnic groups equally, and can cause deafness, brain tumors, learning disabilities, disfigurement and as with Andrés: cancer. NF is more prevalent than cystic fibrosis, muscular dystrophy, and Huntington's disease combined.

Your donation will go to promote NF research through the Harvard Center for NF and Allied Disorders (http://www.cnfad.org)

Donate online or download a form and send in your donation by mail

A donation of any amount is truly very much appreciated!

We know that everyone is stretched in many directions right now, but your donations, of any size, do make a difference. Eventually we will find better treatments and a cure.

Any donation of $175 or more receives a $50 matching gift!

We thank you very much,

Andrés & Lindsay