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$3,500
goal
$4,812
Raised so far

137 % to goal

National Organization for Rare Disorders, Inc.

Boston Marathon 2012

Donations as of September 17, 2014:

$1,970.44 Raised Offline
$2,841.40 Raised Online
$4,811.84 Total Raised

National Organization for Rare Disorders, Inc.

Danbury, CT | EIN: 13-3223946

NORD represents 1 in 10 Americans who have rare diseases with programs of advocacy, education, research and patients services. It serves as the voice of the rare disease community on important issues of public policy. It also provides information on rare diseases in understandable language for patients and their families, with referrals to support groups and other helpful resources. It encourages research on new diagnostics and treatments and administers patients assistance programs. NORD mentors rare disease support groups so that they can more effectively help their members. It serves as the point of connection between the patient community and key government agencies, such as the National Institutes of Health (NIH) and Food and Drug Administration (FDA). Nearly 150 patient organizations are members of NORD and look to NORD for guidance, mentoring and leadership.

Supporters

Comment Donation
RedSox Monster Seats Congratulations on your Marathon run.
$495.00
Donation Box
$21.61*
Hotel Marlowe Auction Item
$190.00*
Matt Riordan
$400.00
Anonymous Silent Auction item
$205.00
Charlie Wang Keep up the great work!
$203.00
Valerie M. Slee, TMS Chair Thank you from all affected by mast cell disorders
$25.00
Kathleen McKinley Way to go!
$50.00
Denise Noviski Good Luck Andrew!!!!
$50.00
The Foster Family THANK U 4 running 4 Gail, NORD & Mastocytosis!
$50.00
Anonymous Good luck, Scholte!
$25.00
Marc Have a good run
$25.00
John Kane Have a good run, Andrew!
$50.00
james silvester 1st Place or bust!!
$25.00
Manu Rangachari Good luck Andrew!
$20.00
Esther & Denis Go, Andrew!
$100.00
Lindsay Sweet Good Luck Andrew!
$50.00
Lee Jarm Good luck Andrew!!!
$100.00
Jen Smialek Have a great race!!
$25.00
jill g Good luck
$100.00
Kathleen Hobbs
$50.00
Valerie Waltman Best of luck Andrew
$50.00
Amy Baldwin Good luck, Andrew!
$150.00
Jaap & Chrissy Good luck and stay hydrated :)
$50.00
Khris and Kat Have fun out there!
$50.00
Mom and Dad Break the 4 hour barrier
$100.00
Don Good luck Andrew!!! Will watch for ya!
$25.00
Colleen McGraw Good luck Andrew!!!
$50.00
Jon D. Lee
$20.00
Shannon Good luck Andrew! Run fast!
$50.00
Gail B Heartfelt Thanks for all you do for us!!
$100.00
Rare Disease Day
$802.83*
Bowling Night
$485.00*
Bill F run forest!
$26.20
Markus Go Tiger!
$42.20
Anonymous
$80.00
Anonymous
$461.00*
Anonymous
$10.00*

Donation Summary

Raised Offline
$1,970
Raised Online
$2,841
Total Raised
$4,812