The VHL Family Alliance provides information for families and physicians about this disorder, and local self-help support groups for families affected with von Hippel-Lindau (VHL). Most importantly, we -- everyone in the VHL Family Alliance -- are active members in a symbiotic partnership with the health professionals and researchers and are making progress in understanding how VHL works, and what tactics might be helpful in moderating the course of the disease. It's only a start, but it's a great deal more than we've ever had before. With your help, we will advance farther in the next year. Help us find a cure!