Thank you for visiting Evan Procko's "Cure Duchenne" fundraising page. 

In March 2008, our beautiful little boy Evan, (then 4 years old), was diagnosed with the 100% fatal genetic disorder, Duchenne Muscular Dystrophy.  Evan's life span without a cure or treatment, is late teens to early 20's.  He is 7 years old right now.  He plays with his big brother without a care in the world.  He has no idea, that during the next 15 years, his muscles will literally disintegrate and be replaced by useless scar tissue.  From this point forward, he will grow weaker and weaker until the last of his muscles, his heart and respiratory muscles, fail. 

Evan has roughly 15 years left to his precious life.  He fully expects to grow up and do the things he dreams about. He wants to be a doctor..."the kind that flies in a helicopter to help people".  He wants to be a chef in a fancy restaurant. He wants to build a dinosaur museum for his big brother.  Imagine the nightmare, as parents, of knowing how and approximately when your child will die, as you tuck him into bed every night, and answer his excited questions about what it will be like when he grows up.    

There are potential treatments in clinical trials right now, which, if moved along quickly enough, may save Evan's life. It's all about money. It's all about money.  Money speeds up research projects.  A treatment or cure must be approved soon or it will do him no good. 

These little boys are our future Presidents, Doctors, entertainers and Dads.  Change their world and they will change yours.  Pay it forward.

Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to our fundraising efforts. Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!

Thank you,  Bill and Kimberly Procko, Evan's Mom and Dad