S.O.S

 

We are screaming for help.  On March 23, 2008, our son, Evan, was diagnosed with Duchenne Muscular Dystrophy, which is 100% fatal, usually by late teens or early 20's. 

 

He is 4 years old.  If you saw him, you would hardly know anything is wrong.  He is very active and always talks about what he will do when he grows up.  Yet, every time one of his muscle cells dies from playing too hard, or even walking too far, it does not regenerate.  If allowed to take its course, Duchenne will rob Evan of his ability to walk by 12. By his mid-teens he will barely be able to breathe for himself.  By his late teens or early twenties, Duchenne will rob Evan's beautiful little heart, of the ability to beat.  We know this as we watch him play with his big brother, and as he asks us excitedly about the future. 

 

No parent should know when or how their child will die. We will not stare into his blue eyes and accept this as his future. We will now live the next ten to 15 years as if they were seconds on a clock.

 

 

 

 

Scientists are close to finding therapies that could dramatically slow down or even completely stop the progression of Duchenne, and give Evan a fairly normal lifespan, just as insulin has done for Type 1 Diabetes patients.   Human trials of some therapies have already met with success. The cure is within our grasp. However, you must understand that Duchenne research is extremely underfunded

 

Funding from your donations will speed research, and get help to our Evan and thousands like him, before it is too late.  Please donate to CureDuchenne.  They are sending donations directly to researchers. Your donation can help make our dreams come true. We originally chose $20,000 as our goal. That is the number of little boys that are born each year with this devastating condition. That is also the number of new moms and dads that will wake up to this nightmare each year. We will continue to raise money and awareness until a cure is found. Please help us to help our son. 

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Donating through this site is simple, fast and totally secure. It is also tax deductable.  You will recieve a letter from Cure Duchenne to use as your tax document. PLEASE forward it to as many people as you feel might want to help our son. 

 

 

There are no small donations. EVERY dollar counts and is sincerely appreciated.  

 

 

 

 

 

 

Sincerely,

Bill and Kimberly Procko 

e-mail: kimberlyprocko@aol.com 

 

Also, please go to CureDuchenne’s website(www.cureduchenne.org), and read all you can about DMD and the progress that is being made so that you can tell others.  We are counting on you.