Thank you for visiting my fundraising page for Illinois Neurofibromatosis Inc!

The 8^th annual Great Steps for NF walk is coming up on June 6^th, 2009 at the Naperville River Walk and i will be joining COLE’S CREW  again, take part in helping to raise money that will fund and support Neurofibromatosis research. The goal this year is to raise over $100,000.

Neurofibromatosis is a genetic disorder and involves the uncontrolled growth of tumors along the nervous system.  It is the most common genetic disorder caused by a single gene.  While not all NF patients suffer from the most severe symptoms, ALL live their lives with the uncertainty of knowing whether they too will be severely affected because NF is a highly variable and progressive disorder. Currently, there is no cure or effective treatment.

NF is never predictable!  It is highly variable and progressive! Over the past 3 years NF has brought my cousin Cole challenges no child should have to endure; scoliosis, headaches, seizures, itching, learning disabilities, high blood pressure, tumors and neurofibromas (small visible tumors on ANY nerve ending). BUT, we have HOPE! We need your help to build awareness and help find a cure.

Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.

Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!