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$1,645
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HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC. GREATER NEW YORK REGION

Team Hope Walk- New York City

Carol Baird's Fundraising Page

This is a picture of the three people I love most in the world.  Richard, my husband of 24 years, and my two teen age sons - Grant, 16 and Geoffrey, 15.

Richard was diagnosed with Huntingtons Disease three years ago, an incurable neurological disease that shrinks his brain, affecting movement, speech and  mental capacity.  He is currently on disability, but still able to get around independently.

More devastating to me is the fact that Huntington's is a genetic disease, and my children have a 50% chance of inheriting the Huntington's gene.  Symptoms don't usually hit until middle age, and testing for the gene is a decision they can make when they are over 21.

We're hoping for a cure before Grant and Geoffrey reach middle age.  But Huntington's Disease is not very well funded, since it's fairly rare. Richard participates in research trials, and we hope the research done for Alzheimer's and Parkingson's will yield some information that transfers to a cure for Huntington's.

This is a slow degenerative process for Richard, and a long worried wait as I look out for symptoms as my children get older.  I can't get that shot of adrenaline and lift a car off them, or give them one of my organs.    But I can help fund the research by reaching out to my friends.  I know I ask every year, and you get approached for contributions to many good causes.  I appreciate whatever you can donate, $5 to $5,000.

Just click on the link to donate online, or send me a check made out the Huntington's Disease Society of America.

Thank you wonderful friends!

Much Love,

Carol

 

 

 

 

Supporters

Comment Donation
Stephanie and Don
$100.00*
Belinda and Albert
$100.00*
Wayne Lammers
$100.00*
Susan Voll
$100.00*
Anonymous
$50.00
Lisa Taber
$30.00
Anonymous
$40.00
Anonymous
$50.00
Lee-Tolley's
$800.00
Anonymous Gary R Milliken
$25.00
James & Min Miller
$100.00
Steve & Lucy
$150.00

Donation Summary

Raised Offline
$400
Raised Online
$1,245
Total Raised
$1,645
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