To all of my family and friends, thank you for making Sjogren's a household word among your acquaintances and in the medical community. I especially thank you for your generosity with last year's fundraising effort for our First Annual Sjogren's Walkabout where Carol Cherubs raised over $2,500.
Here I am again asking for your support in attending the Second Annual Walkabout on Saturday, June 5, 2010 at the Westfield Meriden Mall (9 a.m. registration, 10 a.m. walk begins).
Don and I are blessed with so many friends including friends of our children, Lisa and Donnie, that I feel we can double our walkers to 50 people and engage more passerbys to ask "What is Sjogrens"? Will you join us?
Briefly, I basically diagnosed myself over 15 years ago after symptoms of itchiness, tongue burning, joint pain, fatigue, brain fog, and dry eyes as well as an overall body dryness. It took the doctors seven years to officially diagnosis me. I was one of 10 percent of the Sjogren population to develop non-Hodgkin's lymphoma. The interesting fact is that when I received the drug Rituxan interveniously for over two years, my symptoms of Sjogren's went into remission. However, without money for research of this drug, I can no longer take it until my lymphoma reappears. Dollars raised for research can expedite the process of approving this drug for Sjogren sufferers.
So, dear family and friends, if you can continue to spread the word about Sjogren's and donate $10 to my cause, we will assist The Sjogren's Syndrome Foundation and give hope to 4,000,000 Americans who struggle with this auto-immune disease.
God bless you for any support that you may offer to this cause.
Sjögren's Syndrome Foundation
6707 Democracy Boulevard
Bethesda, MD 20817